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    All About Autism

    Scheduled Pinned Locked Moved Special Needs & Learning Difficulties
    7.9k Posts 412 Posters 2.0m Views 3 Watching
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    • I Offline
      ImMeeMee
      last edited by

      Kar kar, my heart goes out to you.


      With this confirmation, it is likely that everyone in the family goes into activated mode n start to press buttons. All focus will be on your child on what is being done n what else can be done. It will be eat sleep breathe the condition.

      But just bear in mind to also take care of one more person, and that is yourself. The impact on the mummy is the greatest (at least for me) and it will be equally tough on you. Just hang in there.

      1 Reply Last reply Reply Quote 0
      • F Offline
        Fizz
        last edited by

        ImMeeMee:
        Kar kar, my heart goes out to you.


        With this confirmation, it is likely that everyone in the family goes into activated mode n start to press buttons. All focus will be on your child on what is being done n what else can be done. It will be eat sleep breathe the condition.

        But just bear in mind to also take care of one more person, and that is yourself. The impact on the mummy is the greatest (at least for me) and it will be equally tough on you. Just hang in there.
        ImMeeMee

        I agree with you. I still treat my boy as a normal kid in that he gets his fair share of discipline if he steps beyond the boundaries. But I have to manage my expectation of him. His directress once said to me, \"Once you decide to put him in mainstream, you have to manage your expectations. As long as you don't expect him to get top marks in every area, both of you will feel less stressful.\"

        But there are other pressures. My SIL started borrowing storybooks about Autism to explain to her girl why her cousin is behaving this way and that. Not exactly a bad thing...but people will remember that he is ASD. My MIL keeps harping that he must have kenaed shocked when he was a baby and that's why became like that.

        I hope that your family will give you support. People will label and not forget, but we have to soldier on and not be bothered by it.

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        • B Offline
          Blokus
          last edited by

          Kar kar


          I'm also struck by how early the diagnosis is given. But, yet, I think you have given your child a great advantage by detecting it early. Remember, the diagnosis is not important. It doesnt matter if he's got autism, developmental delay, a flu, fever etc. What is important is giving him the treatment he needs, and that, you've done. I've no doubt that one day you will look back and be awed by how much your son has progressed; like many mommies here. :hugs:

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          • H Offline
            helplessmum3
            last edited by

            This is what I have notice. Kar Kar.

            when my son is 2yo, he already knows A- Z & a – z, &number 1 to 100. All colors upto silver & gold. All items at kitchen, all transportations on road, musical instructments etc & etc. he even can recongnize sound are from which items. Example if motorcycle pass by he recongnize the sound, its motorcycle. If piano play he know is from painno trumpet & guitar & so on. He can spells simple words like CAT, DOG, CAR, COW & ICE Cream & etc.
            Back then, I think my son is normal & he is advance. BUT BUT BUT.. NO. it is just purely memory tools.
            Also, can read so what?! , they don’t know what they are reading, its jus purely memory tools again…
            THIS IS AUSTISM… they can’t generize or see bigger pictures…
            These are the areas we need to help them…
            Diagnose and get label, is sucks… diagnose & get help is better..
            For me KKH CDU is like a diagnoses center not helping much.. so what for to get diagnose by KKH cdu, if you are able to get help from private & their helps are better.
            Go kkh, unless u want you son to go govt EPIC. Like rainbow & etc.. recently I get to know there are withdrawals of kids by parents at rainbow because they are regress rather then progress.. this scatter my hope again…
            Also KKH CDU only help until your son go Primary school, within this 3 yrs, example count from 2 yrs to 5 yrs old. U only get help by KKH CDU is EPIC or their HBP “cant make it” therapists.
            I go to KKH CDU because im poor but yet they are not helping at all, keep asking us to go private and get tiny CEL subsidy amount of S$300?!!! If I go Dynamic, I need to pay S$1200/mth less S$300 still I have to pay S$900…HOW??? I dun have this $$.
            I have tried Leo Magan, 1hr = S$50 w group of 4kids.. and its don’t work out!! Imagine one teacher with 4 kids within 1 hr, how could she focus much on individual kids.. u make the calculation.
            Cheap one no good, expensive one, I no $$.. u understand, so I make efforts learn things from mummies here, read book “take two hands to talk” and google for help… and I become my son therapist. 😞
            and sending him to suck cc.. whom they discrimated my son because he is official diagnose by kkh tat he is ASD… in their minds already say my son is difficult.. COME ON. My son did not do all these problem on purpose, it is because of his disability…..
            On top of all these problem, my family depend on my income, as im the only one who works. My husband until now cant find jobs.. he is in depression too.. also another shock my son is ASD, he is even more depression… SEE I HAVE TO DEAL with two meltdowns at home while I struggling to stand up & face all problems & issues. Tat y I say at times I understand Y parents jump down the flat w their kids

            sorry, hope this help for your decision.

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            • H Offline
              hopeful75
              last edited by

              Yes, agree that there might be more cons than pros to have a formal medical diagnosis for a young child.


              What’s more important is to get specialised help to assess them and identify areas that need to be worked on and strategies to help them cope, behave and learn better in group and social settings. Once they are able to function better in group and social settings, it will be easier for mainstream kindergartens and childcare centres to accommodate and help them.

              It might be more helpful to source for early intervention, social skills or school prep programmes run by private centres which do not insist on a medical diagnosis or direct referral from the hospitals. Not necessary individual therapy that charges by the hour (which can be very costly), small group social skills programmes conducted by teachers trained in special ed might be good enough. Such programmes focus on helping the children get used to classroom and school routines, appropriate behaviour in social settings and using strategies that enhance their learning.

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              • B Offline
                Blokus
                last edited by

                Helplessmum, so sorry to hear about your current family situation. It must be challenging and tough to manage everything alone. I hope things will soon brighten up for you.

                1 Reply Last reply Reply Quote 0
                • D Offline
                  Double E
                  last edited by

                  Kar Kar

                  So eventually, you got the private centre to diagnose your son? I thought u mentioned that it is an assessment, so now is a full diagnosis? Like other mummies, I am also quite surprised that the centre will conduct the diagnosis on your son when he is not even 2. All the psychologists that we went to did not recommend to diagnose my boy until he is after 3. Even now, the KKH doc also didn’t think it is necessary to put a label on him until he is 5 and time to take the school assessment test.

                  Or, is it because u insisted a full diagnosis from the centre? Do note that since you have diagnose him so young, he may need to do another one when he is 5/6.
                  And how much did you pay for the full diagnosis?

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                  • H Offline
                    helplessmum3
                    last edited by

                    26Months old. kkh already can diagnosed a child.

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                    • H Offline
                      helplessmum3
                      last edited by

                      Blokus , slimKhoo, thanks. i will have to tell myself to be strong.

                      1 Reply Last reply Reply Quote 0
                      • V Offline
                        verykiasumummy
                        last edited by

                        helplessmum3:
                        Blokus , slimKhoo, thanks. i will have to tell myself to be strong.

                        stay strong... smooth sails never make good sailors...

                        u are of cos a great one...

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