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    All About Autism

    Scheduled Pinned Locked Moved Special Needs & Learning Difficulties
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    • S Offline
      SpecialNeeds
      last edited by

      Does anybody know which school's uniform is this boy wearing ?


      http://singaporeseen.stomp.com.sg/stomp/sgseen/ugly_commuters/380444/mother_and_son_take_up_space_in_crowded_mrt_train.html

      [quote] trivalmatters said on 26 May, 2010 Report as offensive
      I know this boy.. At birth he is already disabled. I dun knw what medical condition but his leg muscles too weak to walk or stand. Give him a break la.. Parents try so hard to raise him still kena shoot by stomper.. Haiz.. You owe him/them an apology[/quote]I think it is quite unfair to have his picture posted up on STOMP with the sub-title \"Ugly Commuters\". I would like to try to contact they (perhaps via the school) to ask STOMP to take down the picture.

      1 Reply Last reply Reply Quote 0
      • W Offline
        windie
        last edited by

        It’s sad that so many Singaporeans pass judgement so quickly. It’s quite clear the boy must have been uncomfortable with the crowd or unwell physically hence the mother had to hold him.

        1 Reply Last reply Reply Quote 0
        • I Offline
          ImMeeMee
          last edited by

          Hello, I am looking for recommendations for clinical diagnosis of autism for my girl of 3 yo.


          TIA.

          1 Reply Last reply Reply Quote 0
          • S Offline
            SpecialNeeds
            last edited by

            You mean diagnsis by a psychologist ? 3 year old normally go KKH or NUH.

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            • I Offline
              ImMeeMee
              last edited by

              insider:
              ImMeeMee:

              Hello, I am looking for recommendations for clinical diagnosis of autism for my girl of 3 yo.


              TIA.

              Hi ImMeeMee,

              I sent you a pm. Pls check...

              Noted with thanks.

              1 Reply Last reply Reply Quote 0
              • W Offline
                WaWa
                last edited by

                Dear all

                I am sure all of you have now read today's ST on adults w autism. For those who have not, do try to get a copy & keep it for future reference. It is as detailed as it can get for now.

                It broke my heart reading the few pages of article - the story is soo close to my heart.

                Even tho my child is still young & started early intervention, I am very worried for him. I honestly do not know how far he can progress... I can only continue his early intervention and hold on dearly to the tiny ray of hope. He is coming to 4 soon ... after 1 full year of speech therapy & > half a year of early intervention, he still doesn't talk and still in a world of his own. In fact, I find his condition \"deteriorating\" despite the early intervention. He started to portray more \"traits of autism\" this year (ie flicking of fingers very close to his eyes, screaming, babbling & more babbling, body rocking, arms flapping.... & more temper tantrums & definitely MORE wailing !!!) It is really painful to see our dear child portraying all these \"idiosyncracies\" and only God knows if he can ever ever climb out of the spectrum or ever ever be able to integrate into society.

                We do try to be positive & keep our hopes high ... but we are careful not to be \"swallowed\" into self-deceit unknowingly. Of course, we do pray hard that with early intervention, he will be able to lead normal life or \"close to normal life\" which is why we are still continuing w his special education & therapies. Right now, we are working on his eye contact, speech & behaviour; don't have much bandwidth to even think about his academic development (this is quite far back in our priority for him now). It is such an irony seeing how many parents today are relentlessly signing their kids up for countless enrichment classes so as to hone their children's academic achievements whereas I am relentlessly signing my kid up for therapies after therapies just to see that he achieves speech & eye contact !

                Still waiting (shall i say longing) for the day where he can utter meaningful words, hold a sensible conversation & has lesser temper tantrums! Can't wait for the day to come where he can control his temper - no more screaming, wailing, body rocking both in public & at home - How NICE that will be 🙂

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                • S Offline
                  schweppes
                  last edited by

                  Hi Wawa,


                  Sori to hear about your distress. I can understand the stress and anxiety that you are going through. Just wondering, in addition to the speech therapy which your ds is currently on, is he also going thru OT? Also, some kids respond to a gluten & lactose free diet and enzyme therapy, and they have been known to help some kids on the spectrum.

                  Whilst there may not be a single cure or therapy that may rid autistic traits, but I truly believe that a holistic approach will help integrate and gradually heal the child in the long run. For example, OT may help in the child's sensory issues and stabilise his vestibular and nervous system; the diet and enzyme therapy will help in the elimination of wastes and improve on the absorption of food nutrients.

                  He may be crying as he could be \"in pain\" due to sensory issues. I know of a child who is averse to photo-taking. She mentioned that whenever the camera flash lights up, she feels that someone is \"piercing a knife\" into her eyes. I know this sounds horrifically graphic but that was how she described the pain to be like whenever the camera flash goes off. Another child cringes when someone touches her, even though it's just a light touch on the shoulder.

                  Guess, each ASD child has different issues. I know I have mentioned this before, but it will get better. It may not seem like that now, but it will.

                  When your child is physiologically and emotionally integrated, the learning will slowly come along. But this will take time. Takes a lot of patience, understanding, patience and 🙏 but both ds and yourself will slowly get there.

                  :hugs:

                  1 Reply Last reply Reply Quote 0
                  • I Offline
                    ImMeeMee
                    last edited by

                    WaWa:
                    Dear all

                    I am sure all of you have now read today's ST on adults w autism. For those who have not, do try to get a copy & keep it for future reference. It is as detailed as it can get for now.

                    It broke my heart reading the few pages of article - the story is soo close to my heart.

                    Even tho my child is still young & started early intervention, I am very worried for him. I honestly do not know how far he can progress... I can only continue his early intervention and hold on dearly to the tiny ray of hope. He is coming to 4 soon ... after 1 full year of speech therapy & > half a year of early intervention, he still doesn't talk and still in a world of his own. In fact, I find his condition \"deteriorating\" despite the early intervention. He started to portray more \"traits of autism\" this year (ie flicking of fingers very close to his eyes, screaming, babbling & more babbling, body rocking, arms flapping.... & more temper tantrums & definitely MORE wailing !!!) It is really painful to see our dear child portraying all these \"idiosyncracies\" and only God knows if he can ever ever climb out of the spectrum or ever ever be able to integrate into society.

                    We do try to be positive & keep our hopes high ... but we are careful not to be \"swallowed\" into self-deceit unknowingly. Of course, we do pray hard that with early intervention, he will be able to lead normal life or \"close to normal life\" which is why we are still continuing w his special education & therapies. Right now, we are working on his eye contact, speech & behaviour; don't have much bandwidth to even think about his academic development (this is quite far back in our priority for him now). It is such an irony seeing how many parents today are relentlessly signing their kids up for countless enrichment classes so as to hone their children's academic achievements whereas I am relentlessly signing my kid up for therapies after therapies just to see that he achieves speech & eye contact !

                    Still waiting (shall i say longing) for the day where he can utter meaningful words, hold a sensible conversation & has lesser temper tantrums! Can't wait for the day to come where he can control his temper - no more screaming, wailing, body rocking both in public & at home - How NICE that will be 🙂
                    all the best, Wawa, and hang on. dont give up.

                    1 Reply Last reply Reply Quote 0
                    • DesertWindD Offline
                      DesertWind
                      last edited by

                      WaWa:
                      It is such an irony seeing how many parents today are relentlessly signing their kids up for countless enrichment classes so as to hone their children's academic achievements whereas I am relentlessly signing my kid up for therapies after therapies just to see that he achieves speech & eye contact!

                      Dear WaWa,

                      Really so sorry to hear about your heartache. Yes I too have read this Straits Times article. Never thought I will be reading it but because my DS at coming to 3 years is still mono-syllabic and earlier on had a scare due to his poor eye contact and attention in pre-school hence sent him for early intervention!

                      It is indeed an irony to see the race going on especially when own kid is not even up to the usual devt. milestones. When my friend suggested this enrichment and that enrichment, I got to tell her I need to attend speech therapy classes to get my DS talking first. Some-more suggestions on even more enrichments and I got to tell my friend if my boy can attend a normal pre-school nicely, that will be an achievement in itself!

                      Take care and entrust your child to God! 🙏

                      1 Reply Last reply Reply Quote 0
                      • W Offline
                        WaWa
                        last edited by

                        Hi Schweppes

                        nice to speak w you again 🙂
                        my avid supporter who never fails to respond to my posting...and always helping me w informative read ..... how hv u been ?

                        yes i have since put my son on GFCF.. but, not 100% lah... maybe only 70% ... the major milestone i did to his diet was being able to switch his cow's milk to rice milk completely ... that's 50% liao 🙂 I have also removed fish from his diet... these days he eats rice / bee hoon / kway teow with broccoli /french beans or spinach as veg... meat is pork ... and only pork ... i seldom give him chicken (i do but seldom).

                        Very occasionally , i still give him some bread(i know this is no no but no choice la.. anyway it is occasional.. ) And occasionally some birthday cakes too (just a small slice) ..

                        Have not tried enzyme cos i heard not cheap lei.

                        Hi ImMeeMee
                        Thanks so much for your encouragement. I am trying to keep my chin up too 🙂

                        Hi DessertWind,
                        I read w interest abt your friend \"recommending enrichment classes to you\".
                        Some time ago, i posted here...and i remembered a fellow parent responded by saying \"sometimes friends , be it well-intent or not, do not know better &...best to ignore them...\" ...Initially I thought nothing of this statement, but now I find it sooooo true...

                        I have this friend who ever once commented \"I think if you keep sending your son for so many classes (she meant the therapies), it is of no use.. it won't help cos he will be so tired...\" I take it to mean that she is implying I am just like a typical kiasu parent , signing my kid up blindly for classes (therapies in my son's case) but fail to realise my son \"can't live up to my expectations\"

                        What she failed to realise is.... my son's \"so-called classes\"(ie therapies) are not similar to those enrichment classes ... In Autism world, ABA has to come consistently, best if done daily to achieve its desired results...I know of parents who send their children for 3hrs ABA Daily.... I can't afford that so i only do 1hr twice a week. For parents who don't know what ABA is.... no point telling them so much. For, they will miscontrue ABA as those \"commercial enrichment centres\" and may even think my son could be \"like this\" as a result of my \"pushing\". See, My son used to do ABA twice weekly, weekly speech, weekly OT... and my friend, upon hearing this, commented \"why u sign your kid up for so many classes...It is no use to keep going classes...he needs a break\" I didn't know how best to explain to my this fren that these are not your typical \"classes\" ..... and my boy is not your typical kid. They need such consistency to help them \"function\" ...in fact , the ABA therapist have been urging me to do more ...but i cannot afford the time & the fees...

                        Anyway, I have since decided not to talk too much to parents who are clueless about Autism but yet try to show that they seem \"aware\". Cos , at the end of the day, they don't understand what we are going through, even though they may claim they understand. some also claim they have asd kid, so they understand....but it really depends on the spectrum... my personal opinion is parents w high-functioning asd kids may not understand ASD & the required therapies in excellent details cos their children are high-functioning & most likely won't need ABA . Sometimes when their kids can talk so much & so well, & they still keep coming to me & complain about their child not \"following instructions well\", i do not know how to tell them off nicely to leave me alone... cos they do not know their action is causing me \"more grieve\" ... I mean, for example , if your son (same age as my son) can talk so well, can relate to others, has excellent eye contact, has the ability to communicate his needs & wants ...just that he presents some very \"slight idiosyncracies\" and u keep complaining to me abt him and how u cannot stand his \"idiosyncracies albeit slight\", and here I am, the one with the \"non-verbal, non-responsive, highly in his own world\" child - now, tell me, how does that make me feel? It is like stabbing me right in front of my eyes - the pain is so piercing.

                        Don't get me wrong - I am not here to say how insensitive or how selfish my friend is... To give her benefit of the doubt, she is probably unaware of her own actions too. Maybe she is too absorbed with her own child to remember that others' are having a worse time than her. My point is , for such people, I now maintain my distance... as I feel I have a lot more on my plate than to listen to her \"sorrows\" which I feel are \"non-issues\" compared to what I am facing, compared to what many others are facing ... and listening to her complaining about how she cannot stand her child doing repetitive work will inadvertently add stress to my already very depressed self 😮

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