All About Autism
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hquek,
thanks for the encouragement, but truly, you think I\"m doing a lot only because you didn't see just how bad his skin was. When we went to the playground, even the other (small) children asked about it. Some even asked if he had hand foot mouth disease. At the food court, strangers would be pointing at his legs and whispering. Even the pharmacist at Guardian told me I'd better take him to a doctor - and he had already been to three by then! The worst was when nothing worked. He had diarrhea, he was skinny, couldn't put on weight, couldn't sleep, every night as he scratched I could smell the blood, and the doctors had nothing to offer. Now at least there's improvement and a plan that works. All I feel is great relief.
Shweppes,
enzyme treatment is new to me! I will check it out, thanks!
Blobbi,
actually our common acquaintance A told me whole food is the best - you can see and be sure what goes in. That was one of the best advice I got. All the GF mixes on the shelves contain too many ingredients, it makes allergy tracking very difficult. Besides there is the risk of cross contamination and many products taste terrible.
HOWEVER, I recently found a great GF baking book that was highly recommended by someone whose family has been GF for many years. The title is Flying Apron's Gluten-free & Vegan Baking Book.
The recipes don't rely on GF flour mixes from the shelves, and they don't use soya, which we are also avoiding. The author used to run a successful bakery so these are tried and tested recipes. I baked with ds2 yesterday afternoon and he was so busy licking the mixing bowl. :love: You can get the flours from selected Cold Storage outlets. Happy baking!
Alamak, I think I have totally OT from the thread title. So sorry! Will zip out now. -
Blobbi:
Oh dear... poor boy. What about taking them in liquid form instead? Maybe that will help.
Nothing helps, Schweppes :(. He has a multitude of sensory issues - can't swallow, can't stand certain textures ... Very long list.
:xedfingers:
Thinking aloud, sometimes, I think there's a time and place to the number of intervention or therapies the child (and even parent) has to go thru. The body has its limits and we are also constrained by resources as well.
Guess, do what you have to do now, and when your ds is more ready, then perhaps, that is the time his body is ready to accept enzymes therapy. dd1 only started on enzymes when she was 12.
Hope I'm making sense. Sori, if my reasoning sounds confusing. Just don't fret too much. Believe that there is a time and place for everything. And when the right time comes, hopefully, everything will fall into place.
:hugs: -
deminc:
Hi deminc
Shweppes,
enzyme treatment is new to me! I will check it out, thanks!
Alamak, I think I have totally OT from the thread title. So sorry! Will zip out now.
Sent u a PM :lol:
Btw, not off topic lah as diet intervention is very relevant to the thread title as well
:celebrate: -
we have just gone for assessment, and my dd3 has been assessed to be autistic - moderate. We have started therapy sessions and are looking into early intervention.
I am not being defensive or in self-denial here, but we think the psychological assessment is somewhat subjective.
Just want to hear some views. thanks. -
Where did your daughter had her assessment ?
My son had his at Child Guidance Clinic. He did WISC, observation and we had parent interview. What I personally felt is, the result of the parent interview really is what we tell the psychologist. I would be interested to hear a case whereby they come out of the assessment and the result is negative (i.e. the child has no autism). -
SpecialNeeds,
My son was found not to be autistic/aspergers.
He was evaluated privately after having been referred by his occupational therapist for dyslexia and aspergers. He failed the initial screen for aspergers but was found to be alright on the basis of the observation. I don’t quite remember the interview, only that it was quite reassuring.
On the other hand, I think they missed a whole lot of other issues. Whatever it is, don’t take the official diagnosis as the most accurate one. If you have doubts either way, do seek a second opinion or look for ways to address the situation. Personally, I’m more interested in a way to resolve the issues -that’s the only thing the diagnosis is useful for (to me). As parents, we’re with our kids 24X7. No professional will know them the way we do after even after several consultations. -
thanks all for the encouragement and views.
you are right that we should focus more on the what can be done to improve the situation, rather than to delve on the assessment itself.
have also thought of giving up my job to take care of her, but finances would be tight then, considering that therapy and intervention programs are not cheap.
its a whole lot of new struggles. -
Blobbi:
Hi,SpecialNeeds,
My son was found not to be autistic/aspergers.
He was evaluated privately after having been referred by his occupational therapist for dyslexia and aspergers. He failed the initial screen for aspergers but was found to be alright on the basis of the observation. I don't quite remember the interview, only that it was quite reassuring.
On the other hand, I think they missed a whole lot of other issues. Whatever it is, don't take the official diagnosis as the most accurate one. If you have doubts either way, do seek a second opinion or look for ways to address the situation. Personally, I'm more interested in a way to resolve the issues -that's the only thing the diagnosis is useful for (to me). As parents, we're with our kids 24X7. No professional will know them the way we do after even after several consultations.
The parent interview (for diagnosis done at CGC) was lengthy. Both parents are in and the questions refer to the child's behaviour before age of 4 and after age of 4 (current). Some of the facts before age of 4 cannot remember well.
I can imagine there must be more than one approach or method for diagnosis and different clinic may adopt different metthodology.
To me, the diagnosis report is an \"official paper\" for me to ask for some conveniences from the school. My son is in mainstream school. There are small things like - I wanted him to have extra time for his year end examination. The school could only agree to it, if we have a 'report'. And this cost a lot of $ to get.
Another thing is that my son also has a bit of dyslexia. He will read words jumping a bit. And he is left handed. So the standard exam paper that is printed on A4 paper, is not very friendly to him. I would like the paper to be enlarge to a A3 size, if possible, and printed on single side, so that he does not have to flip the pages, otherwise he lost the words. It took him extra effort to over come the turning of pages, and lifting his left hand to read the words otherwise covered by his own hand while writing.
Things like this. Only us parent who help him on day to day basis, know what he needs.
I felt that, on this point, MOE/School should not be too insistance on having a 'report'. Thus, there is a need to educate or create greater awareness of the education sector, on the needs of special needs children.
Other than the above, I have not touched the official report once ever since we had them. -
SpecialNeeds:
Hi, do you mean your son complains that the words jump on the page? My son has the same exact complaint, and also had signs of dyslexia. Sama sama - jumping words, reversals, missing lines of text, losing place on page etc. I took him to three different places to check his vision and it seems he has difficulties with binocular vision (with 6/6 vision in each eye)and a few other things. He is currently doing vision therapy. I did do all that enlargement of words etc as well, still do sometimes, but ultimately, I think addressing the fundamental vision issue is more important. just something to consider. I know I really puzzled over his eyes for a long time and was rebuffed by quite a few eye practioners who did not believe us and implied he was making up his symptons :x .Another thing is that my son also has a bit of dyslexia. He will read words jumping a bit. And he is left handed. So the standard exam paper that is printed on A4 paper, is not very friendly to him. I would like the paper to be enlarge to a A3 size, if possible, and printed on single side, so that he does not have to flip the pages, otherwise he lost the words. It took him extra effort to over come the turning of pages, and lifting his left hand to read the words otherwise covered by his own hand while writing.
Things like this. Only us parent who help him on day to day basis, know what he needs. -
Visual Perception is the ability to interpret, analyze and give meaning to what is seen. The process of taking in one’s environment is referred to as "perception." If this perception is incorrect or altered in any way, a child will present with reading, spelling, handwriting, maths and comprehension problems.
Visual perception may be connected to physical eye issues but even with 20/20 vision, a child can still struggle to organize visual information.
So, eye practioners are not the right people to see.
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