All About Autism

[specialboymum]

helplessmum3:

Mashy,

I did not denied just want to prepare what next n wat are e pros n cons..

I hav make so much mistake now .. So I'm worry I might make any further demages to my son..

I'm not smart or sharp. I understand things very slow, my English is limited too..
And I hav limitation of money & also time. My health is Poor too..

My greatest mistake is I shdnt hav a kid n make him suffer when I can't manage or deal with ..

Hi helplessmum3,

It is very important that as a parent, you need to be strong for your kid. I think many of here understand how you feel since we went through the same phase. I still remember my boy's school principal advised me not to get too stress because my boy will feel it- and it may impact him negatively because he doesn't understand and will be wondering what he did wrong.

Just take things one step at a time. As I mention earlier, don't harp too much on whether is autism or not, just focus on the intervention plan. Maybe start with his most apparent problem first, if it is behavior, maybe you want to start with behavior management therapy, such as ABA therapy. There are different kinds of options available, which I'm sure everybody here are willing to share....
Do also talk to your family members, get them involved in helping your son, as you can't do this alone

Regarding your question on what is meltdown.. it is just throwing terrible tantrum lah. My boy is King of meltdown when he was younger, he will lie on the floor, screaming and kicking in public when he got into some nervous breakdown. You can imagine we always invite lots of disapproval glare. There was once he did it in a busy shopping centre. One family actually stop and stare at me fighting with my son like watching a show. I just smiled at them after I managed to calm him down. They left after the performance ended. It was very embarrassing at first but eventually we learnt to be thick skin and ignored the stares

[helplessmum3]

Specialboymum,

Thanks . My son didn’t hav behavior problem yet…

He just seldom want to interact, like to play himself , must call at Least 3 times of his name then he turn n look just for awhile and back to his engrossed with…

When he play drum for instance, he will play and say this is a drum then knock a few time say "drum" then graze at me. Just never force me to see him play…

He will pull me to the shelve to get him cookies by graze at cookies. Through his body language n expression I know he want cookies. I will ask him "u want cookies" he will smile and just say "cookies" very loudly…

Do they need to nop head?

Last time he doesn’t like hair dryer sound now its no longer affecting him… Just stare at me blowing my hair … Last time he will jus cover his ears by his hands. I didn’t teach him how to cover his ears…

[helplessmum3]

ABA therapy is it expensive ?


My only family member is my husband .

U are so strong …

[lavendery]

Hi schweppes and Snow Crystal,


Thanks for the encouragement and consolation. I'm fine, the worse has been more or less been over for me and I'm trying to gather my strength and pick myself up slowly. No choice, continue to live in sorrow and misery won't do any good for my girl especially time is running out.

Meantime I'm helping her in whatever intervention I can do for her while waiting for her to get assess.

Wondering anyone letting your child receiving biomed treatments at the same time too? Please kindly let me know your reviews and what kind of tests and supplements are required for your child. Thanks a lot

[helplessmum3]

Supplements ? Is it costly… Oh God…


Lavendery, u currently pay all cost under private?

Which therapy are u going ?

[lavendery]

Helplessmum3,


You do not need to be so panic. Alternative treatements are subjective and really up to individual. There's no one size fits all. Bottom line basic therapies (eg SLT, OT, ABA etc) should still be your first line defense to treat your child. Again this is just my own opinion. If your son can talk well, no sensory issue, no behaviour problem, then i think you do not need to be as worried as me.

My girl is presently having her speech therapies with Leapfrogs. Depending on the psychologist diagnosis, which I believe may only be out by April cos she will only assess my girl by next month too. I have more or less guess maybe my girl might need OT and ABA too *sigh*

Meantime I'm also queuing up at KKH for diagnosis for second opinion too cos it's better to seek two opinions before i judge my child's condition.

Supplements should be expensive I guess. That's why I'm asking around, I have no idea

[helplessmum3]

Lavendery,

How much does leapfrog physcologist charge ?

I will send my son to PLT first…

[lavendery]

Leapfrogs is a EIP centre, which has speech language therapy, education therapy and occupational therapy and its also has RDI too. RDI is another alternative of ABA. But RDI and ABA should never be mixed together cos they are using different protocols.


My girl is seeing her psychologist at Mindmatters. First time consultation with parents and caretaker is 1hr so that she can gather as much informations and inputs regarding about the kid. Subsequently is the assessment where it will consist of 3 tests to be conducted separately on three days, each assessment will last 1.5hr.

There will also be forms and questionairs to be filled up by the parents/caretaker and the classform teacher too. In the event if there’s any grey areas, the psychologist may have to sit in the classroom to observe my girl for better diagonsis. Personally i feel that its very expensive. Hope this helps.

[specialboymum]

helplessmum3:

Specialboymum,

Thanks . My son didn't hav behavior problem yet..

He just seldom want to interact, like to play himself , must call at Least 3 times of his name then he turn n look just for awhile and back to his engrossed with..

When he play drum for instance, he will play and say this is a drum then knock a few time say \"drum\" then graze at me. Just never force me to see him play..

He will pull me to the shelve to get him cookies by graze at cookies. Through his body language n expression I know he want cookies. I will ask him \"u want cookies\" he will smile and just say \"cookies\" very loudly...

Do they need to nop head?

Last time he doesn't like hair dryer sound now its no longer affecting him.. Just stare at me blowing my hair ... Last time he will jus cover his ears by his hands. I didn't teach him how to cover his ears..

You are doing fine. Instead of calling him to get him to interact with you, perhaps you can join in in his game, for example, when you see him playing drum, you can join him in beating the drum, you can also further engage him by singing to the beat or march around the house.

By pulling you to the shelve, it is also a form of communication, to expand his language, maybe you can get your husband to be his model, so when you ask him \"Do you want cookie\", your husband can prompt him by saying, \"yes, I want cookie.\"

[specialboymum]

there are lots of alternate methods such as gcfc, biomed etc but there are always reports saying these methods are not scientifically sound. To me, I rather keep an open mind, as long as it doesn’t hurt him, I’m willing to try. For GCFC diet and Biomed, they are expensive and difficult to keep up. So far, I only give my son fish oil, vitamin B12 and magnesium (in the form of multivitamin)


I have also try TCM accupressure. Also difficult to keep up. It doesn’t really help to improve his behavior but it helps in improving his sleep.