All About Autism
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nugget:
Yes, my dd is in secondary school now. She's happier now and more at peace with herself and those around her.Hi schweppes,
Thanks for the insight. So your dd now is already in Secondary school? Coping well in school work and socially?
It was very tough in the beginning. So many questions and uncertainties. To defer or not, to send to special ed sch or not, to disclose to sch or not, to disclose to her or not.... the worries, heartache and tears were endless.
Half the time don't know whether making the right decision. Sometimes the naysayers may say one thing but your gut feel/ parents' instincts may think otherwise. Sometimes, just don't think so much, and just plunge in with a leap of faith. And hope all will turn out ok.
Most times, it feels like an emotional, physical and spiritual roller coaster ride. It was mentally and physically exhausting. I wallow in self pity during the downslides and allow myself to grieve and cry during those dark moments. Spousal support is very important.
But must also remind myself to pick myself up and stay mentally and emotionally strong to overcome those dark days. And for every little victory, celebrate those as well - no matter how big or small. -
A few years ago, when dd was 13yo, our family went on a faith journey to the Holy Land. One agenda on the itinerary was to climb Mt Sinai, Egypt which is 2,285m high.
Was very proud of dd. She conquered most parts of the mountain, except for the last 500 metre where the guide advised us parents that she should not climb. By then, she had hiked and trekked uphill for almost 2,000 (it was a 3 hr climb up) and by then, she was physically tired.
For safety reason, we were advised that she did not climb the final stretch to the peak. To have done what she did was really amazing as we found out that she was one of the youngest foreigner/ tourist to achieve this feat.
dh carried on the journey to the top. In the meantime, dd and myself stayed at the rest stop, almost 2,000m from the ground and watched the sunrise together. It was a spectacular and beautiful moment.
When dd gave her testimony at the end of the trip, she reflected that climbing Mt Sinai was like overcoming her challenges in life. Later, she privately shared with dh and I that conquering the mountain is conquering her ASD.
Oh dear… tearing now as I’m typing this. -
schweppes:
Even though I just started this journey last year, I realised that this is a never ending journey until the last moments we closed our eyes for good.
Yes, my dd is in secondary school now. She's happier now and more at peace with herself and those around her.
It was very tough in the beginning. So many questions and uncertainties. To defer or not, to send to special ed sch or not, to disclose to sch or not, to disclose to her or not.... the worries, heartache and tears were endless.
Half the time don't know whether making the right decision. Sometimes the naysayers may say one thing but your gut feel/ parents' instincts may think otherwise. Sometimes, just don't think so much, and just plunge in with a leap of faith. And hope all will turn out ok.
Most times, it feels like an emotional, physical and spiritual roller coaster ride. It was mentally and physically exhausting. I wallow in self pity during the downslides and allow myself to grieve and cry during those dark moments. Spousal support is very important.
But must also remind myself to pick myself up and stay mentally and emotionally strong to overcome those dark days. And for every little victory, celebrate those as well - no matter how big or small.
I tell myself, my objective is to provide the best for my child. Do whatever I can while I am still alive and healthy. Help them as much as we can.
No pointing fingers and buried myself in \"why why why\". Our parents keep saying DS will be fine when he grow up, cos he sure grow \"out of it\".
Its a really tough journey and I am also unsure if the choices I made are right or not. But all the decisions I made is in the best interest for my kid. Sometimes I feel like shouting back at my parents \"You think I wanted to put him through the therapy for nothing??\" They think I am so free, with so much money and time and enjoy putting stress on my HB and son??
Sometimes we just need to turn to deaf ear to other people's eyes and ears and do what we deem right for our child.
Lucky we have this thread, else I would be tearing my hair out.
Yes celebrate all the victories and I everyday also grieve inside my heart. But life still goes on happy or sad. I need to be strong for my other kids. Might as well keep the chin up and stay positive.
Jiayou everyone! -
schweppes:
Oh mine. U also made me tear reading this..A few years ago, when dd was 13yo, our family went on a faith journey to the Holy Land. One agenda on the itinerary was to climb Mt Sinai, Egypt which is 2,285m high.
Was very proud of dd. She conquered most parts of the mountain, except for the last 500 metre where the guide advised us parents that she should not climb. By then, she had hiked and trekked uphill for almost 2,000 (it was a 3 hr climb up) and by then, she was physically tired.
For safety reason, we were advised that she did not climb the final stretch to the peak. To have done what she did was really amazing as we found out that she was one of the youngest foreigner/ tourist to achieve this feat.
dh carried on the journey to the top. In the meantime, dd and myself stayed at the rest stop, almost 2,000m from the ground and watched the sunrise together. It was a spectacular and beautiful moment.
When dd gave her testimony at the end of the trip, she reflected that climbing Mt Sinai was like overcoming her challenges in life. Later, she privately shared with dh and I that conquering the mountain is conquering her ASD.
Oh dear... tearing now as I'm typing this.
I am looking forward to that day where my son share with me his thoughts about his condition and how he determine to overcome it.
So happy for you that your dd is doing fine now
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specialboymum:
yes, it was a HBO TV movie. Not sure if can get it at video rentals. Maybe can check it out.I think the temple grandin movie is a HBO TV movie and it wasn't shown in local cinema right?
I wonder if we can get it from video shop or download for free??specialboymum:
Some interesting stuff to read to start off the day. Latest US findings show that 1:88 kids are diagnose with autism.. don't think we will be that far off... Who knows, at the rate we are going, our special kids will become new norms... hahaha
http://www.cdc.gov/Features/CountingAutism/
oh my... that sounds like an alarming figure.
Actually i tend to think that we are all on the spectrum.. just at different points on it. Think that as we grow older, these \"deficiencies\" becomes less obvious? Either that, or adults learn to be more tolerant of each other's \"deficiencies\" and just see those behavior as \"weird\" without really ostracizing the other party.
I mean, sometimes, we see adults behaving differently and these are well educated people. In fact, used to think that my ex-boss, a director, was on the spectrum too. -
nugget:
:snuggles: :hugs: :hugs:
Oh mine. U also made me tear reading this..schweppes:
A few years ago, when dd was 13yo, our family went on a faith journey to the Holy Land. One agenda on the itinerary was to climb Mt Sinai, Egypt which is 2,285m high.
Was very proud of dd. She conquered most parts of the mountain, except for the last 500 metre where the guide advised us parents that she should not climb. By then, she had hiked and trekked uphill for almost 2,000 (it was a 3 hr climb up) and by then, she was physically tired.
For safety reason, we were advised that she did not climb the final stretch to the peak. To have done what she did was really amazing as we found out that she was one of the youngest foreigner/ tourist to achieve this feat.
dh carried on the journey to the top. In the meantime, dd and myself stayed at the rest stop, almost 2,000m from the ground and watched the sunrise together. It was a spectacular and beautiful moment.
When dd gave her testimony at the end of the trip, she reflected that climbing Mt Sinai was like overcoming her challenges in life. Later, she privately shared with dh and I that conquering the mountain is conquering her ASD.
Oh dear... tearing now as I'm typing this.
I am looking forward to that day where my son share with me his thoughts about his condition and how he determine to overcome it.
So happy for you that your dd is doing fine now -
[quote]oh my... that sounds like an alarming figure.
Actually i tend to think that we are all on the spectrum.. just at different points on it. Think that as we grow older, these \"deficiencies\" becomes less obvious? Either that, or adults learn to be more tolerant of each other's \"deficiencies\" and just see those behavior as \"weird\" without really ostracizing the other party.
I mean, sometimes, we see adults behaving differently and these are well educated people. In fact, used to think that my ex-boss, a director, was on the spectrum too.[/quote]Yes I agree wth you on that. I think all of us have traits of ASD and I do things as our kids grow up, the traits seems to be better as they are better under controlled. That's why early intervention is important.
Does your daughter still attend any therapy now? Was she in EIPIC or seeing any therapist last time? I think 10 years ago, the awareness of ASD is not there yet right? Also not much EIPIC centre. -
so glad most of you at least have one normal child. for me this is my first. And i duno i have the courage to have another one… worried will have ASD too…
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i just teared reading all the posts.
for me, i received a call from my daughter's kindy principal to advise me to bring her to KK hospital for evaluation as she feels that my daughter is abit different from the rest of the kids in her class. that happen during K1, 2 yrs ago. and it was when i just found out that i was preggie with my 2nd kid. imagine from my happines of being newly preggie, and the shattering pain i felt when i heard what her principal says. it was denial at first, saying nothing is wrong , she will be ok, until self reproach, why why me?? why her?? then picking myself up and saying\" if me as her mother don't help her, who will ?\"
i remember going with her to therapies even at my last month of pregnancy , and telling the therapist,\" oh can we stop her for a mth cause i am due to give birth next week\"
it was a long journey for all of us here. but it will get better.
every day my daughter seems to be improving too.
2 days ago, i bought some cute stationery for my daughter's buddies. and i told her to pass it to her buddies to show her appreciation. she actually took the intiative to write a small note and paste it on the pressies, saying thank you for helping me .
my mummy when picking my daughter up during dismissal time was asking her buddy, did my daughter pass the gift to her? then her buddy was smiling and saying yes, auntie! thank you!
i was so glad when my mum told me, cause my gal did remember that she has the gifts inside her school bag and pass it to her buddies :rahrah:
it is a big step for her in my opinion.
but , haha the only rant is , she actually told me \" mummy, u bought for my buddies, but how about me? can i have one too? \" :stupid: -
chibi:
i just teared reading all the posts.
oh dear... sorry, didn't mean to make you all tear with me. :snuggles: :hugs:chibi:
such a wonderful feeling, right?for me, i received a call from my daughter's kindy principal to advise me to bring her to KK hospital for evaluation as she feels that my daughter is abit different from the rest of the kids in her class. that happen during K1, 2 yrs ago. and it was when i just found out that i was preggie with my 2nd kid. imagine from my happines of being newly preggie, and the shattering pain i felt when i heard what her principal says. it was denial at first, saying nothing is wrong , she will be ok, until self reproach, why why me?? why her?? then picking myself up and saying\" if me as her mother don't help her, who will ?\"
i remember going with her to therapies even at my last month of pregnancy , and telling the therapist,\" oh can we stop her for a mth cause i am due to give birth next week\"
it was a long journey for all of us here. but it will get better.
every day my daughter seems to be improving too.
2 days ago, i bought some cute stationery for my daughter's buddies. and i told her to pass it to her buddies to show her appreciation. she actually took the intiative to write a small note and paste it on the pressies, saying thank you for helping me .
my mummy when picking my daughter up during dismissal time was asking her buddy, did my daughter pass the gift to her? then her buddy was smiling and saying yes, auntie! thank you!
i was so glad when my mum told me, cause my gal did remember that she has the gifts inside her school bag and pass it to her buddies :rahrah:
it is a big step for her in my opinion.
these are the little steps of victorieschibi:
:love:but , haha the only rant is , she actually told me \" mummy, u bought for my buddies, but how about me? can i have one too? \" :stupid:
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