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    All About Autism

    Scheduled Pinned Locked Moved Special Needs & Learning Difficulties
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    • S Offline
      specialboymum
      last edited by

      Hi Nugget,


      Thanks, I will try, hope it will work.

      Hi lavendery,

      I believe each and every of us here have experience some hurtful comments from people around us, whether it is intention or not. For me, I ever got the accusation from my in laws that I bring in ‘bad genes’ to their family line… it still hurts when I think about it, because the remark is not only insult to me but my whole family. Anyway, we can’t stop people from saying what they want to say, or do anything to change their mindset, so just rant out here- we can lend our listening ear or rather ‘eyes to read’, just move on to do what you need to do to help your child after that.

      The professionals and experts can give advices based on their observation of your child, but I think we will still be in the best position to decide what is suitable for our kid. Just take their advices as references, but go by your heart to decide how to help your child. A couple of my kid therapists have given me suggestion to defer enrollment to primary 1 . My husband and I thought over it for a long time and decided to disregard whatever that has been suggested, and put him in mainstream. It is still too soon to tell if our decision is right, but we haven’t regret it yet. So far, he has been showing significant improvement

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      • N Offline
        nugget
        last edited by

        specialboymum:

        The professionals and experts can give advices based on their observation of your child, but I think we will still be in the best position to decide what is suitable for our kid. Just take their advices as references, but go by your heart to decide how to help your child. A couple of my kid therapists have given me suggestion to defer enrollment to primary 1 . My husband and I thought over it for a long time and decided to disregard whatever that has been suggested, and put him in mainstream. It is still too soon to tell if our decision is right, but we haven't regret it yet. So far, he has been showing significant improvement
        Ok, I will just listen first and trust my gut feeling and see how it goes.

        1 Reply Last reply Reply Quote 0
        • L Offline
          lavendery
          last edited by

          Thanks all for the consolations. Sorry I guess this is just one of those days whereby i have snapped and loose grip of myself.


          I got it from my SIL (my husband's sister) too. She could not understand why we have not been able to visit my husband's parents. She too accused me that before I started to feel unjustified or blame her parents' nagging, she told me to do some soul searching of myself first.

          Could she try to understand my situation too before she said that to me? I'm alone facing this situation. Yes alone. My dear husband is still living in his own world refusing to accept the truth. I guess my SIL won't understand and perhaps she will never be able to understand unless she has a special kid too.

          Regardless if its weekdays after office hours or weekends, I either find myself rushing to school or still need to stay back for work so that I have this extra money called 'overtime pay' to pay for my girl's SLT and OT. My girl's psychologist even mentioned my girl need RDI also and a special school setting will be beneficial for her. All these do not come cheap at all, including her GFCFSF organic diet and her biomed treatments with the tests and supplements she is taking per month.

          Where and how on earth do I find time to visit them when I myself is depriving from sleep and hardly have time to rest when I got so much commitments on hand. Cos I knew everytime even if I go there, it will always be the same nagging from them. They only know how to complain who and who, else directly question me when I'm going to bear them a grandson to carry on their family line. I rather save my time and effort in working overtime and pay for my girl's therapies, than visiting them regularly 😞

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          • I Offline
            ImMeeMee
            last edited by

            lavendery:
            Thanks all for the consolations. Sorry I guess this is just one of those days whereby i have snapped and loose grip of myself.


            I got it from my SIL (my husband's sister) too. She could not understand why we have not been able to visit my husband's parents. She too accused me that before I started to feel unjustified or blame her parents' nagging, she told me to do some soul searching of myself first.

            Could she try to understand my situation too before she said that to me? I'm alone facing this situation. Yes alone. My dear husband is still living in his own world refusing to accept the truth. I guess my SIL won't understand and perhaps she will never be able to understand unless she has a special kid too.

            Regardless if its weekdays after office hours or weekends, I either find myself rushing to school or still need to stay back for work so that I have this extra money called 'overtime pay' to pay for my girl's SLT and OT. My girl's psychologist even mentioned my girl need RDI also and a special school setting will be beneficial for her. All these do not come cheap at all, including her GFCFSF organic diet and her biomed treatments with the tests and supplements she is taking per month.

            Where and how on earth do I find time to visit them when I myself is depriving from sleep and hardly have time to rest when I got so much commitments on hand. Cos I knew everytime even if I go there, it will always be the same nagging from them. They only know how to complain who and who, else directly question me when I'm going to bear them a grandson to carry on their family line. I rather save my time and effort in working overtime and pay for my girl's therapies, than visiting them regularly 😞
            dear lavendery, I feel you are one strong person to be able to take this to this far, being much alone without support from ILs and spouse. :salute:

            do take care of yourself and consider pacing yourself where possible. This is a long drawn process and we need to conserve energy where we can.

            jmho.

            1 Reply Last reply Reply Quote 0
            • M Offline
              mashy
              last edited by

              lavendery:
              Thanks all for the consolations. Sorry I guess this is just one of those days whereby i have snapped and loose grip of myself.


              I got it from my SIL (my husband's sister) too. She could not understand why we have not been able to visit my husband's parents. She too accused me that before I started to feel unjustified or blame her parents' nagging, she told me to do some soul searching of myself first.

              Could she try to understand my situation too before she said that to me? I'm alone facing this situation. Yes alone. My dear husband is still living in his own world refusing to accept the truth. I guess my SIL won't understand and perhaps she will never be able to understand unless she has a special kid too.

              Regardless if its weekdays after office hours or weekends, I either find myself rushing to school or still need to stay back for work so that I have this extra money called 'overtime pay' to pay for my girl's SLT and OT. My girl's psychologist even mentioned my girl need RDI also and a special school setting will be beneficial for her. All these do not come cheap at all, including her GFCFSF organic diet and her biomed treatments with the tests and supplements she is taking per month.

              Where and how on earth do I find time to visit them when I myself is depriving from sleep and hardly have time to rest when I got so much commitments on hand. Cos I knew everytime even if I go there, it will always be the same nagging from them. They only know how to complain who and who, else directly question me when I'm going to bear them a grandson to carry on their family line. I rather save my time and effort in working overtime and pay for my girl's therapies, than visiting them regularly 😞
              Jia you! U are a tough cookie! Not easy to handle all these by yourself and with such negativity from the closest people.

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              • N Offline
                nugget
                last edited by

                Sigh its really not an easy journey and sometimes I feel we are so alone.


                Not knowing if every choice we made for our kid is right or not. Not gaining support and understanding from our love ones, some of us are even getting blame for our kids situation. Experts and therapists giving their opinions which you feel its untrue and unfair due to the short time they spent with your child.

                Argh… Really frustrating sometimes. On top of this, we still need to juggle with work, additional expenses, our other kids’ needs and household chores!! No wonder if I am getting more white hair!

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                • H Offline
                  helplessmum3
                  last edited by

                  thanks Mashy, written alot now.


                  Nugget, i cant focus in work & study. cant find best solution for my situation. im only sole income for my family now..

                  I jus went to one therapist for diagnose my son.

                  She say:-

                  1.\tMy son no social interaction,
                  2.\tDid not look at her much, only when she blow bubble or tickle him.
                  3.\tSmile at him no smile back. (My son is always smiling)
                  4.\tNo bring toys to me when play
                  5.\tEye contact is good with me & my husband but not her.
                  6.\tCall his name no response, only when say “ his name & Look” then he turn his head.
                  7.\tMy son has pretend play ( this will lead to imaginary play later).
                  8.\tMy son now start to babble
                  9.\tIQ is more then average. (using NUS test)
                  10.\tmy son no obsession of any toys or did not lay up toys in line very much.
                  11.\tmy son is able to point to item that he is interested.
                  12.\tMy son is able to request things that he wants in sentences.
                  13.\tknow how to say”stop “if he don’t like.
                  14.\tKnow how to get my help to open when needed , and say “open”
                  15.\tBring inflated balloon to me and say “blow”
                  16.\tKnow how to self feed, wear shoe, put shoe back to rack & put dirty clothes to laundry net.


                  base on item 1-6 he is already austism.

                  :?

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                  • L Offline
                    lavendery
                    last edited by

                    I’m not tough, it’s just that circumstances has made me to go this far. If I have a choice, I rather be just a normal person. To be fair, I believe all mummies with special kids have their fair share of woes and stress to cope daily. Let’s all JiaYou for the sake of our kids.


                    Hi Helplessmum,

                    How much did you pay for the psychologist? Our kids are so young, they can test IQ already? Are you also present when the psychologist is testing your son?

                    Things will turn up better for you financially once your hubby has found a job. You are in a much better and fortunate position since your son IQ is above average. It’s much more easier to start off with.

                    1 Reply Last reply Reply Quote 0
                    • M Offline
                      mashy
                      last edited by

                      So long as display 6 out of 12 symptoms, it's considered that it meets the criteria for autism. So no need everything. All autistic kids are different becoz they all have different symptoms that meet the criteria.


                      I think perhaps because you have only one kid so there is no basis for comparison and how a normal kid should behave. After having my second kid, I noticed that huge difference. What I took for granted that it's normal wasn't actually normal. My no 2 will show me her work proudly, bring me around to show me things, point out stuff and we could have a decent conversation from the time she was 18 mths. She understood what it is to have a conversation ie, I ask a question, she answers, then she say something. U know, taking turns in talking and in relation to the topic. My no 1 is delayed in this development. Till now, when I call him or talk to him, I'm like talking to a wall sometimes.

                      So be open about it. Just continue taking notes and be happy when he makes a new progress. 🙂

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                      • H Offline
                        helplessmum3
                        last edited by

                        lavendery:
                        I'm not tough, it's just that circumstances has made me to go this far. If I have a choice, I rather be just a normal person. To be fair, I believe all mummies with special kids have their fair share of woes and stress to cope daily. Let's all JiaYou for the sake of our kids.


                        Hi Helplessmum,

                        How much did you pay for the psychologist? Our kids are so young, they can test IQ already? Are you also present when the psychologist is testing your son?

                        Things will turn up better for you financially once your hubby has found a job. You are in a much better and fortunate position since your son IQ is above average. It's much more easier to start off with.

                        this one i pay S$500.. Yes there is IQ test for 2.5yo.. two kind of models. they use NUS model, and time him when asking him to do a task, im at present but we cant help him. jus let him do himself..

                        actualy my son b4 2yrs already done and IQ test at NUS.. he is above average..

                        now jus for austism they use diff model, but similar.

                        did you daughter do the iq test w leadfrog, does their therapy help?

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