All About Autism
-
Double E:
Lacuna, my boy had a major meltdown today and recently he was totally not keen to play at those indoor playground or Water feature type of playground and I m so stressed by it. He used to be ok with such places nice he warmed up but now, he just refused to try. And his tantrums is getting from bad to worse, he will have a few melt downs each day which is driving me crazy.
I begin to suspect if is the music therapy. Cos before he had that, he'a temper was more manageable and he was willing to play at the playgrounds after some warm up. Now I thinking if I should stop music therapy for him.
What is the title of the CD and what (spatial/ calmess/etc?) does it target at? If your boy has strong reactions to that CD, it probably shows that he is weaker in the area the CD is targeting at, and you need to reduce the time taken for listening until he is more ready. You should notify your OT asap and seek advice on what to do next. Also, it is a must to do heavy work after each listening. If your OT cannot be contacted over the weekend, it's best that you stop the CD first until you talk to her again, cos the effect will build up and your kid cannot handle too much of it. In the mean time, just to remember to do more heavy work with him.
My ds2 has been on music therapy for 1 year. Yes, you need to be very patient to follow through with the therapy to see and believe its effectiveness. The initial 6 months, I thought son was very temperamental. I was so sceptical of music therapy and it's pretty expensive to try without any guarantee of success. Only after the first 6 months did I start to see positive effects and I start to like it very much. I also realised later how important heavy work after each listening is, something which I thought very lightly of.
(Note my kid has no autism. He needs OT for other reasons.) -
slmkhoo:
I was watching a Korean drama. In the show, a high sch boy asked another if he could only choose between a date with IU (a famous Korean star) or enter Korea university, which one will he choose? His friend was so bothered by it that he couldn't study for his exams. His tutor asked him, have he dated IU or is entering university? He replied neither. He hasn't even met IU in person and he's far from entering university. Another elder upon knowing this also wondered whether he should buy a pc of land or property if he should win lottery. But he hasn't even bought lottery!helplessmum3:
back in my mind i still hope my son will one day get married, but how hiaz.. i think can't...no parents will wan their daughters to marry a autism man..
I think you are worrying too much. Your son will grow and develop and learn coping strategies between now and his adult years. He will be a completely different person then compared to now, so why worry about it now? In any case, he may not even want to marry. Focus on helping him deal with his issues now and you will be surprised how well he can learn to manage. It will seem very slow, but as long as he gets there in the end, don't worry about the speed. Looking back over the years, I can see how far my daughter has come. Although sometimes I got really tired, if parents give up, who else will take over?
It's so funny watching them because they are worrying over things that haven't happened and may not even remotely happen. In fact they appear quite dumb. Similarly, we should not be worrying over things that haven't happened. And worse still, affect your daily work and responsibilities. -
Picolo:
PicoloDouble E:
Lacuna, my boy had a major meltdown today and recently he was totally not keen to play at those indoor playground or Water feature type of playground and I m so stressed by it. He used to be ok with such places nice he warmed up but now, he just refused to try. And his tantrums is getting from bad to worse, he will have a few melt downs each day which is driving me crazy.
I begin to suspect if is the music therapy. Cos before he had that, he'a temper was more manageable and he was willing to play at the playgrounds after some warm up. Now I thinking if I should stop music therapy for him.
What is the title of the CD and what (spatial/ calmess/etc?) does it target at? If your boy has strong reactions to that CD, it probably shows that he is weaker in the area the CD is targeting at, and you need to reduce the time taken for listening until he is more ready. You should notify your OT asap and seek advice on what to do next. Also, it is a must to do heavy work after each listening. If your OT cannot be contacted over the weekend, it's best that you stop the CD first until you talk to her again, cos the effect will build up and your kid cannot handle too much of it. In the mean time, just to remember to do more heavy work with him.
My ds2 has been on music therapy for 1 year. Yes, you need to be very patient to follow through with the therapy to see and believe its effectiveness. The initial 6 months, I thought son was very temperamental. I was so sceptical of music therapy and it's pretty expensive to try without any guarantee of success. Only after the first 6 months did I start to see positive effects and I start to like it very much. I also realised later how important heavy work after each listening is, something which I thought very lightly of.
(Note my kid has no autism. He needs OT for other reasons.)
I have no idea what is the title of the CD as the therapy was done during OT and I have not started music therapy at home. I will go with my boy to his OT this week to find out more.
And today, his CC teacher feedback that he was not as responsive last week and he doesn't seem happy. He used to be smiley and responsive. Hiaz...I am very scared of listening to such feedback. I really hope is the case of him regressing a little now and make a quantum leap of improvement soon.
Anyway, thanks for the info on music therapy -
dear mums, my earlier posts had mentioned that my 3yr old son still not speaking & communicates through screaming & crying.
well, at a recent family gathering, i had brought my son along, & my cousin’s boys were playing with my son & my son, started screaming when 1 of the boy touched a toy that my son was playing. so the boy commented to his younger bro "u better don’t go near him, later he scream again, i cannot stand his noisyness, so irritating". i was there & heard him said it. den , some relatives who noticed that my son was screaming, asking me "whats wrong with him? keep screaming like got problem, u got bring him see doc anot?" den another relative said"i tink yr son got problem, u better bring him see doc"
all sounded like my son got problem. i just said, he doesn’t have any problem, he’s just not able to speak properly YET. in fact, we left halfway cos the kids were tired.
worst, an uncle told me this"wa, look after kids tired anot? who ask u get married & ve kids la" i replied him tired sure will tired, but im happy cos ive 2 healthy kids & i never regretted getting married & having kids. so what he’s an elder, so rude to comment like this when 1 of his children is already married.
To me, i feel that the people who has problems are my relatives, not my son. -
Pat Pat Mummyjune :snuggles:
there will sure be some ignorant people around.
I learn to take them with a pinch of salt, afterall my DD well being is more important to me.
I got it mani times from those parents when i send my DD to kindy last time , she hates going to kindy , always cry n cry when she goes in, some ahmas wil still walk behind me and ask me whats wrong with her? :roll: i always got urge to rebuke them, \" can't you tell she hates school? and stop getting in my way!!!\"
:pokeeye:
I am glad that my DD loves going to her pri. school now.
those words that are not constructive and are not helpful to our kids, learn to ignore them, tho its hard at times as words can really be hurting at times.
But remember, what doesnt break you makes you stronger . -
mummyJune:
dear mums, my earlier posts had mentioned that my 3yr old son still not speaking & communicates through screaming & crying.
well, at a recent family gathering, i had brought my son along, & my cousin's boys were playing with my son & my son, started screaming when 1 of the boy touched a toy that my son was playing. so the boy commented to his younger bro \"u better don't go near him, later he scream again, i cannot stand his noisyness, so irritating\". i was there & heard him said it. den , some relatives who noticed that my son was screaming, asking me \"whats wrong with him? keep screaming like got problem, u got bring him see doc anot?\" den another relative said\"i tink yr son got problem, u better bring him see doc\"
all sounded like my son got problem. i just said, he doesn't have any problem, he's just not able to speak properly YET. in fact, we left halfway cos the kids were tired.
worst, an uncle told me this\"wa, look after kids tired anot? who ask u get married & ve kids la\" i replied him tired sure will tired, but im happy cos ive 2 healthy kids & i never regretted getting married & having kids. so what he's an elder, so rude to comment like this when 1 of his children is already married.
To me, i feel that the people who has problems are my relatives, not my son.
Agree..sometimes their words can be quite disheartening ..we cant stop people from commenting and giving us sugesstion to bring see doc etc etc..diff kids develop at a diff pace...me too have a son who is a late talker....so dont worry wen time to come ur kid will talk non stop
...cheer up!!!
-
chibi:
haha, i sure ve to learn from u. my son hates going to childcare. always screams & cry at the main gate. also got those ahmas gossip like my son got problem. normally we just ignore.Pat Pat Mummyjune :snuggles:
there will sure be some ignorant people around.
I learn to take them with a pinch of salt, afterall my DD well being is more important to me.
I got it mani times from those parents when i send my DD to kindy last time , she hates going to kindy , always cry n cry when she goes in, some ahmas wil still walk behind me and ask me whats wrong with her? :roll: i always got urge to rebuke them, \" can't you tell she hates school? and stop getting in my way!!!\"
:pokeeye:
I am glad that my DD loves going to her pri. school now.
those words that are not constructive and are not helpful to our kids, learn to ignore them, tho its hard at times as words can really be hurting at times.
But remember, what doesnt break you makes you stronger . -
hehe mummyjune, my mum who helped bring my daughter to kindy usually last time, will tell me, those pple who gossip are usually those who got mouth to say others, no mouth to talk about themselves. :nailbite:
why bother about them?
-
mummyJune:
dear mums, my earlier posts had mentioned that my 3yr old son still not speaking & communicates through screaming & crying.
well, at a recent family gathering, i had brought my son along, & my cousin's boys were playing with my son & my son, started screaming when 1 of the boy touched a toy that my son was playing. so the boy commented to his younger bro \"u better don't go near him, later he scream again, i cannot stand his noisyness, so irritating\". i was there & heard him said it. den , some relatives who noticed that my son was screaming, asking me \"whats wrong with him? keep screaming like got problem, u got bring him see doc anot?\" den another relative said\"i tink yr son got problem, u better bring him see doc\"
all sounded like my son got problem. i just said, he doesn't have any problem, he's just not able to speak properly YET. in fact, we left halfway cos the kids were tired.
worst, an uncle told me this\"wa, look after kids tired anot? who ask u get married & ve kids la\" i replied him tired sure will tired, but im happy cos ive 2 healthy kids & i never regretted getting married & having kids. so what he's an elder, so rude to comment like this when 1 of his children is already married.
To me, i feel that the people who has problems are my relatives, not my son.
Mummy June
Totally understand how u feel because that was exactly what my boy did over the weekend at her sister, my gal's birthday party. First he refused to go in the play gym, when we tried to coax him to try the slides, he cried. Then, he went to play with the toys and threw huge tantrums when another boy snatched it from him. He tried to snatch back but was not quick enough. I am perplexed cos he is verbal, but instead of telling the boy that he wants the toy, he choose to cry and scream. He was like dat throughout the party. So can you imagine how distraught I am? Here we are celebrating my girl's birthday and my boy is screaming away. My hubby and I totally have no mood and I broke down at the end of the party when some of my friends tried to console me. I know they meant well but the more they tried to console me, the worse I feel. And I had to tell a white lie to concerned friends and relatives who saw me with my swollen eyes. I had to lie that my eyes were itchy and I rubbed it. BTW, all my friends know about my boy's condition, I am open about it.
And my mil asked my hubby why my boy behaved so badly that day (cos he was usually ok at my mil's place) and my hubby had to explain to her. We did tell my mil about my boy's condition but she didn't really understand what is autism and how it affects a person. So on that Sat, she knew.
We are going to the playgym again for another party in two weeks time. I cross my fingers. But I determined to help him get over it so that he can enjoy the indoor playgrounds again like he used to. I am sure, that day will come. -
chibi-ya ur mum is right. sometimes its better to keep the mouth shut den anyhow comment.
DoubleE-ya, i also totally understand how u feel. cheer up, im sure yr boy will be ok at the next playgym party.
I know my son will sure scream, so when he was sitting there & playing the toys, i make sure i sit next to him in case he screamed i can stopped him & tell him Y he cannot scream. or else next time anything he wants, he duno how to say , only scream.
but sometimes i feel that even bringing my son out is a challenge cos since now he can’t talk properly but we are trying to help him with words daily, like that day it was raining & we were at the bus-stop, he can tell my mum "raining". so now, take 1 step at a time. i sometimes feel very stressup, kept thinking y my son like that, iszit during my pregnancy i did something wrong or what. haiz…
Hello! It looks like you're interested in this conversation, but you don't have an account yet.
Getting fed up of having to scroll through the same posts each visit? When you register for an account, you'll always come back to exactly where you were before, and choose to be notified of new replies (either via email, or push notification). You'll also be able to save bookmarks and upvote posts to show your appreciation to other community members.
With your input, this post could be even better 💗
Register Login