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    All About Autism

    Scheduled Pinned Locked Moved Special Needs & Learning Difficulties
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    • K Offline
      Karkar
      last edited by

      Blokus:
      Mums


      My son's autism test is next week. But after 2 social skills sessions at wee care, the therapist thinks if we can work on his social communication then maybe we can try to aim for language disorder rather than autism. So, it was suggested that I postpone the test while we give him some time to work on social skills. However, I found out that the wait list for the test is very long. So if I postpone it, it may drag till like next March or so. My hub thinks that's fine. But I feel like so sayang. Yet, I don't need any diagnosis now since we are still going to mainstream and so far he seems to be independent enough at school.

      So how? It looks like I've to wait another 6 more months to know. What would you do if you were me?
      i postponed mine. or rather change the date to later. i just got diagnosis that hes confirmed ASD. hes 2 years old soon and i am warned that his autism behaviour would come later. eye contact, awareness of social environment and lack of recognition of representation are his problems. i will wait for the formal report and yes, i am signing up for him home therapy program, 10 hr/week. we as parents and grandparents would learn to carry out more sessions under guidance of therapist.

      he is doing hand flapping this week and toewalking seems more often now. regression!! and he does delayed echolalia, his counting and doing alphabet songs doesn't mean anything. Psychologist advised to stop the music and dis encourage meaningless counting or recital.

      Hey Autism, i know you have been in our family for a while, but you just got confirmed. sad enough, but i try to stay positive. hope miracle will happen. He's a lovely kid, he deserves much more than this.

      1 Reply Last reply Reply Quote 0
      • M Offline
        mashy
        last edited by

        Karkar:
        Blokus:

        Mums


        My son's autism test is next week. But after 2 social skills sessions at wee care, the therapist thinks if we can work on his social communication then maybe we can try to aim for language disorder rather than autism. So, it was suggested that I postpone the test while we give him some time to work on social skills. However, I found out that the wait list for the test is very long. So if I postpone it, it may drag till like next March or so. My hub thinks that's fine. But I feel like so sayang. Yet, I don't need any diagnosis now since we are still going to mainstream and so far he seems to be independent enough at school.

        So how? It looks like I've to wait another 6 more months to know. What would you do if you were me?


        i postponed mine. or rather change the date to later. i just got diagnosis that hes confirmed ASD. hes 2 years old soon and i am warned that his autism behaviour would come later. eye contact, awareness of social environment and lack of recognition of representation are his problems. i will wait for the formal report and yes, i am signing up for him home therapy program, 10 hr/week. we as parents and grandparents would learn to carry out more sessions under guidance of therapist.

        he is doing hand flapping this week and toewalking seems more often now. regression!! and he does delayed echolalia, his counting and doing alphabet songs doesn't mean anything. Psychologist advised to stop the music and dis encourage meaningless counting or recital.

        Hey Autism, i know you have been in our family for a while, but you just got confirmed. sad enough, but i try to stay positive. hope miracle will happen. He's a lovely kid, he deserves much more than this.

        I don't quite understand the reason behind stopping the music. My NT gal also sings. Why does it need to mean anything? She repeats songs from memory, recite di zi GUI which I read to her from young. She's now singing gangnam style!

        1 Reply Last reply Reply Quote 0
        • M Offline
          mashy
          last edited by

          And the so called meaningless counting is just to memorize the sequence of the nos. it is numeracy literacy. He is less than 2 yrs old. So I don’t know why there’s a need to look more to it than necessary.

          1 Reply Last reply Reply Quote 0
          • H Offline
            helplessmum3
            last edited by

            I just after my night school n reached home .


            I saw my neighbor who I duno him , they stay near my block.

            His son can’t walk properly kind . They always practise walking at our neighbourhood …

            Now they are resting at bus stop to either take a break or wait for his wife.

            It is so heart warming especially a man who take care of his disable son.

            They are talking n smiling away at the bus stop

            1 Reply Last reply Reply Quote 0
            • F Offline
              Fizz
              last edited by

              mashy:
              Karkar:

              [quote=\"Blokus\"]Mums


              My son's autism test is next week. But after 2 social skills sessions at wee care, the therapist thinks if we can work on his social communication then maybe we can try to aim for language disorder rather than autism. So, it was suggested that I postpone the test while we give him some time to work on social skills. However, I found out that the wait list for the test is very long. So if I postpone it, it may drag till like next March or so. My hub thinks that's fine. But I feel like so sayang. Yet, I don't need any diagnosis now since we are still going to mainstream and so far he seems to be independent enough at school.

              So how? It looks like I've to wait another 6 more months to know. What would you do if you were me?


              i postponed mine. or rather change the date to later. i just got diagnosis that hes confirmed ASD. hes 2 years old soon and i am warned that his autism behaviour would come later. eye contact, awareness of social environment and lack of recognition of representation are his problems. i will wait for the formal report and yes, i am signing up for him home therapy program, 10 hr/week. we as parents and grandparents would learn to carry out more sessions under guidance of therapist.

              he is doing hand flapping this week and toewalking seems more often now. regression!! and he does delayed echolalia, his counting and doing alphabet songs doesn't mean anything. Psychologist advised to stop the music and dis encourage meaningless counting or recital.

              Hey Autism, i know you have been in our family for a while, but you just got confirmed. sad enough, but i try to stay positive. hope miracle will happen. He's a lovely kid, he deserves much more than this.

              I don't quite understand the reason behind stopping the music. My NT gal also sings. Why does it need to mean anything? She repeats songs from memory, recite di zi GUI which I read to her from young. She's now singing gangnam style![/quote]Kar Kar
              To diagnose a child this early at less than 2 years old, is it accurate? As for eye contact, my son had very fleeting eye contact since toddler days and still has. This is actually one of the conditions which puts him on the spectrum but not classical case. Since recently, the ASD spectrum has broadened so much that more and more kids are being classified as falling into the spectrum. Some of the things which your kids here are capable of doing, my NT gal is still not doing. Some of the things your kids here can't do, my ASD boy achieved them very early. The area is so grey. I think many ASD kids have IQ as good or even better than NT kids. Their main area of concern is the social aspect.

              Mashy
              My gal also recites the 百家姓 thingy and songs too. I don't think she understands very thing she recites too...she's only 3+. But her 咬字 is not very good. She always misses the 's' sound...Spidergirl becomes Pidergirl.

              1 Reply Last reply Reply Quote 0
              • I Offline
                ImMeeMee
                last edited by

                Kar kar, my heart goes out to you.


                With this confirmation, it is likely that everyone in the family goes into activated mode n start to press buttons. All focus will be on your child on what is being done n what else can be done. It will be eat sleep breathe the condition.

                But just bear in mind to also take care of one more person, and that is yourself. The impact on the mummy is the greatest (at least for me) and it will be equally tough on you. Just hang in there.

                1 Reply Last reply Reply Quote 0
                • F Offline
                  Fizz
                  last edited by

                  ImMeeMee:
                  Kar kar, my heart goes out to you.


                  With this confirmation, it is likely that everyone in the family goes into activated mode n start to press buttons. All focus will be on your child on what is being done n what else can be done. It will be eat sleep breathe the condition.

                  But just bear in mind to also take care of one more person, and that is yourself. The impact on the mummy is the greatest (at least for me) and it will be equally tough on you. Just hang in there.
                  ImMeeMee

                  I agree with you. I still treat my boy as a normal kid in that he gets his fair share of discipline if he steps beyond the boundaries. But I have to manage my expectation of him. His directress once said to me, \"Once you decide to put him in mainstream, you have to manage your expectations. As long as you don't expect him to get top marks in every area, both of you will feel less stressful.\"

                  But there are other pressures. My SIL started borrowing storybooks about Autism to explain to her girl why her cousin is behaving this way and that. Not exactly a bad thing...but people will remember that he is ASD. My MIL keeps harping that he must have kenaed shocked when he was a baby and that's why became like that.

                  I hope that your family will give you support. People will label and not forget, but we have to soldier on and not be bothered by it.

                  1 Reply Last reply Reply Quote 0
                  • B Offline
                    Blokus
                    last edited by

                    Kar kar


                    I'm also struck by how early the diagnosis is given. But, yet, I think you have given your child a great advantage by detecting it early. Remember, the diagnosis is not important. It doesnt matter if he's got autism, developmental delay, a flu, fever etc. What is important is giving him the treatment he needs, and that, you've done. I've no doubt that one day you will look back and be awed by how much your son has progressed; like many mommies here. :hugs:

                    1 Reply Last reply Reply Quote 0
                    • H Offline
                      helplessmum3
                      last edited by

                      This is what I have notice. Kar Kar.

                      when my son is 2yo, he already knows A- Z & a – z, &number 1 to 100. All colors upto silver & gold. All items at kitchen, all transportations on road, musical instructments etc & etc. he even can recongnize sound are from which items. Example if motorcycle pass by he recongnize the sound, its motorcycle. If piano play he know is from painno trumpet & guitar & so on. He can spells simple words like CAT, DOG, CAR, COW & ICE Cream & etc.
                      Back then, I think my son is normal & he is advance. BUT BUT BUT.. NO. it is just purely memory tools.
                      Also, can read so what?! , they don’t know what they are reading, its jus purely memory tools again…
                      THIS IS AUSTISM… they can’t generize or see bigger pictures…
                      These are the areas we need to help them…
                      Diagnose and get label, is sucks… diagnose & get help is better..
                      For me KKH CDU is like a diagnoses center not helping much.. so what for to get diagnose by KKH cdu, if you are able to get help from private & their helps are better.
                      Go kkh, unless u want you son to go govt EPIC. Like rainbow & etc.. recently I get to know there are withdrawals of kids by parents at rainbow because they are regress rather then progress.. this scatter my hope again…
                      Also KKH CDU only help until your son go Primary school, within this 3 yrs, example count from 2 yrs to 5 yrs old. U only get help by KKH CDU is EPIC or their HBP “cant make it” therapists.
                      I go to KKH CDU because im poor but yet they are not helping at all, keep asking us to go private and get tiny CEL subsidy amount of S$300?!!! If I go Dynamic, I need to pay S$1200/mth less S$300 still I have to pay S$900…HOW??? I dun have this $$.
                      I have tried Leo Magan, 1hr = S$50 w group of 4kids.. and its don’t work out!! Imagine one teacher with 4 kids within 1 hr, how could she focus much on individual kids.. u make the calculation.
                      Cheap one no good, expensive one, I no $$.. u understand, so I make efforts learn things from mummies here, read book “take two hands to talk” and google for help… and I become my son therapist. 😞
                      and sending him to suck cc.. whom they discrimated my son because he is official diagnose by kkh tat he is ASD… in their minds already say my son is difficult.. COME ON. My son did not do all these problem on purpose, it is because of his disability…..
                      On top of all these problem, my family depend on my income, as im the only one who works. My husband until now cant find jobs.. he is in depression too.. also another shock my son is ASD, he is even more depression… SEE I HAVE TO DEAL with two meltdowns at home while I struggling to stand up & face all problems & issues. Tat y I say at times I understand Y parents jump down the flat w their kids

                      sorry, hope this help for your decision.

                      1 Reply Last reply Reply Quote 0
                      • H Offline
                        hopeful75
                        last edited by

                        Yes, agree that there might be more cons than pros to have a formal medical diagnosis for a young child.


                        What’s more important is to get specialised help to assess them and identify areas that need to be worked on and strategies to help them cope, behave and learn better in group and social settings. Once they are able to function better in group and social settings, it will be easier for mainstream kindergartens and childcare centres to accommodate and help them.

                        It might be more helpful to source for early intervention, social skills or school prep programmes run by private centres which do not insist on a medical diagnosis or direct referral from the hospitals. Not necessary individual therapy that charges by the hour (which can be very costly), small group social skills programmes conducted by teachers trained in special ed might be good enough. Such programmes focus on helping the children get used to classroom and school routines, appropriate behaviour in social settings and using strategies that enhance their learning.

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