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    All About Autism

    Scheduled Pinned Locked Moved Special Needs & Learning Difficulties
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    • H Offline
      helplessmum3
      last edited by

      vksmummy,


      i jus call mcys for help, they say the only help is from CEL tat is S$300 for private EPIC. gosh… manz!!

      and low income family help which is salary below 1700.,

      1 Reply Last reply Reply Quote 0
      • I Offline
        ImMeeMee
        last edited by

        If I may, let’s give kar kar a break on whether she should have gone for the diagnosis. I’m sure mummies here are of the kind intention to play down the diagnosis given the young age of the child, but I think the decision of going for a diagnosis and when to do that is really a personal choice, and is dependent on individual context n situation that only the parents are aware of.


        What done is done. I’m sure kar kar didn’t come to the forum to have an analysis on what should have been but rather on what should it be moving forward, and the moral support n companionship of fellow parents here in moving ahead.

        JMHO

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        • I Offline
          ImMeeMee
          last edited by

          If I may, let’s give kar kar a break on whether she should have gone for the diagnosis. I’m sure mummies here are of the kind intention to play down the diagnosis given the young age of the child, but I think the decision of going for a diagnosis and when to do that is really a personal choice, and is dependent on individual context n situation that only the parents are aware of.


          What done is done. I’m sure kar kar didn’t come to the forum to have an analysis on what should have been but rather on what should it be moving forward, and the moral support n companionship of fellow parents here in moving ahead.

          JMHO

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          • B Offline
            Blokus
            last edited by

            ImMeeMee:
            If I may, let's give kar kar a break on whether she should have gone for the diagnosis. I'm sure mummies here are of the kind intention to play down the diagnosis given the young age of the child, but I think the decision of going for a diagnosis and when to do that is really a personal choice, and is dependent on individual context n situation that only the parents are aware of.


            What done is done. I'm sure kar kar didn't come to the forum to have an analysis on what should have been but rather on what should it be moving forward, and the moral support n companionship of fellow parents here in moving ahead.

            JMHO
            Agree!

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            • B Offline
              Bookwrappers
              last edited by

              Helplessmum and kar kar, i feel very affected about how struggling it would be in your shoes. You are all the great mummies in the world. Stay strong so as to give the best you can for your children.

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              • K Offline
                Karkar
                last edited by

                Double E:
                Kar Kar

                So eventually, you got the private centre to diagnose your son? I thought u mentioned that it is an assessment, so now is a full diagnosis? Like other mummies, I am also quite surprised that the centre will conduct the diagnosis on your son when he is not even 2. All the psychologists that we went to did not recommend to diagnose my boy until he is after 3. Even now, the KKH doc also didn't think it is necessary to put a label on him until he is 5 and time to take the school assessment test.

                Or, is it because u insisted a full diagnosis from the centre? Do note that since you have diagnose him so young, he may need to do another one when he is 5/6.
                And how much did you pay for the full diagnosis?
                initially its for the psychologist to draft out the initial plan, i went for private for their emphasis on planning and evaluation, not too much on diagnosis.

                the formal term they use is full evaluation, when i asked my case manager whether its with diagnosis, she said yes. the psychologist almost confirmed him verbally when she heard my son do echolalia by sayin 1-10 and ABC song. mummies, not to worry, after that night, i thought it through what psychologist said during 3-hr observation, i realized that she's not right in everything. i am waiting for report and see the content of it.

                in fact, what i struggle in right now is not how i can apply ABA at home, but how i can connect with him and get close to him. How to play with him and make him happy is something i keep on thinking. if our bonding is not strong, how do I expect my son to learn from me? i chose home therapy programme so that i can generalize the learning at home and outside. now i am still waiting for the centre to provide me with their plan.

                Double E, as for the fee, i paid 950, but i am yet to receive their report.

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                • K Offline
                  Karkar
                  last edited by

                  mashy:


                  I don't quite understand the reason behind stopping the music. My NT gal also sings. Why does it need to mean anything? She repeats songs from memory, recite di zi GUI which I read to her from young. She's now singing gangnam style!
                  that's why i wont follow all that Psychologist suggests. I will take what i think it's right. if i stop the songs, stop reading books, i am running out of resources to get to him. when i sing and read, he looks at me and waits for me to say the next line/word, but if he can, he would say it. that's wonderful.

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                  • K Offline
                    Karkar
                    last edited by

                    ImMeeMee:
                    Kar kar, my heart goes out to you.


                    With this confirmation, it is likely that everyone in the family goes into activated mode n start to press buttons. All focus will be on your child on what is being done n what else can be done. It will be eat sleep breathe the condition.

                    But just bear in mind to also take care of one more person, and that is yourself. The impact on the mummy is the greatest (at least for me) and it will be equally tough on you. Just hang in there.
                    ImMeeMee, thank you so much.
                    All mummies, thanks for all your comments. no worries no criticism. each post gets me to think. it's good to hear different perspectives.

                    I learn that fighting with autism is a long battle, every mummy/daddy needs to be consistent in caring for their lovely child. i will take care of myself. In the past 2 months, i have not been wearing makeup to work, i have not been going to facial, i have not been using skin products and doing masks, i have not been going out for a drink except to welcome my london gf. my active life style has been changed, and i am happy that i can make that sacrifice for my dear son and i am not sad about losing those vibrant life.. (I couldn't even imagine myself baby sit a child before pregnancy)..i grew up to be a responsible mother, i am proud of myself and i am proud of the gift god sent - my son. He's a lovely and happy kid. mum here needs extra kick to get to his heart and touch his soul 🙂 i wont give up

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                    • K Offline
                      Karkar
                      last edited by

                      I feel you, helplessmum3. cheers up, rainbow after the storm will be right at the corner. I feel sorry about your husband’s situation. I feel you for being the only one who works to support family. my family is slightly better but i am living with inlaws when my hubby works overseas. there’s no immediate chance for him to come back to sg yet. I am alone to deal with this together with my inlaws. my parents are not living in SG. thinking of getting them to come for easier communication. I need to work to support family and future expensive therapy session, I need to read up books on ABA, VB, RDI, TEACCH etc to better assess therapist and what’s needed for my son, and learn the skills to play with my son,(i am not a mother with baby instinct), need to convince and teach inlaws what to do, constantly explain to them why this why that but still not being followed. the pressure on our women is simply enormous. but we need to be strong.


                      can we now get the subsidy of 300 per month even if we engage other private centres not in their CEL list?

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                      • D Offline
                        Double E
                        last edited by

                        Kar kar and Helplessmum, it must be very hard on both of u to deal with this situation alone. Stay strong.

                        1 Reply Last reply Reply Quote 0

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