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    All About Autism

    Scheduled Pinned Locked Moved Special Needs & Learning Difficulties
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    • D Offline
      Double E
      last edited by

      Mashy

      U are lucky that your boy is referred to KKH’s rehab and u are paying a subsidized rate. For many of us that are managed by KKH’s CDU, do not have access to the rehab. My boy was referred to the rehab only because our pte PD wrote to KKH to check his ears, so even when we go to the rehab, we pay pte rate. This is a serious gap that KKH needs to address. And comparing the therapists in rehab and HPB (referred by KKH CDU) , I find that the therapists in rehab are better and more experienced and they conduct useful courses for like "It takes two to Talk" for parents.

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      • S Offline
        specialboymum
        last edited by

        Gee… wonder why the information I got from KKH CDU different from all of you. The doctor and nurses at CDU said that therapies at KKH rehab is not for kids on the spectrum, therefore they placed me on the waiting list for CDU service… which in end I decided not to wait for it.


        I find that CDU is understaffed and many are inexperienced. I think my son will be stuck and not progress if I totally rely on them to plan for his intervention program. Very often, they leave me feeling lost and don’t know how to proceed. Glad that we are at internet age, when I can google more knowledge and or exchange information from forum like this.

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        • M Offline
          mashy
          last edited by

          specialboymum:
          Gee.. wonder why the information I got from KKH CDU different from all of you. The doctor and nurses at CDU said that therapies at KKH rehab is not for kids on the spectrum, therefore they placed me on the waiting list for CDU service.. which in end I decided not to wait for it.


          I find that CDU is understaffed and many are inexperienced. I think my son will be stuck and not progress if I totally rely on them to plan for his intervention program. Very often, they leave me feeling lost and don't know how to proceed. Glad that we are at internet age, when I can google more knowledge and or exchange information from forum like this.
          Then that's becoz they have never been in contact with them! The rehab centre have social skills group, handwriting classes, sch readiness Prog etc. those on the spectrum can also attend! In fact they are trying to find another kid to pair with my boy for social skills therapy. They have a gym for children doing OT and sound proof room for those who needed quietness. The therapies are ready and I've not heard of a waiting list existing in rehab unlike in CDU.

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          • M Offline
            mashy
            last edited by

            Recently they had a talk on music therapy too.

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            • M Offline
              mashy
              last edited by

              Double E:
              Mashy

              U are lucky that your boy is referred to KKH's rehab and u are paying a subsidized rate. For many of us that are managed by KKH's CDU, do not have access to the rehab. My boy was referred to the rehab only because our pte PD wrote to KKH to check his ears, so even when we go to the rehab, we pay pte rate. This is a serious gap that KKH needs to address. And comparing the therapists in rehab and HPB (referred by KKH CDU) , I find that the therapists in rehab are better and more experienced and they conduct useful courses for like \"It takes two to Talk\" for parents.
              Yes, agree that we have been lucky. Else will be so lost... Can't u get a PD from Kkh to refer u?

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              • D Offline
                Double E
                last edited by

                I asked the doctor and nurses from CDU about their rehab services, but they seem lost and just told me that they don’t share resources and work independently. So duh!!

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                • M Offline
                  mashy
                  last edited by

                  Double E:
                  I asked the doctor and nurses from CDU about their rehab services, but they seem lost and just told me that they don't share resources and work independently. So duh!!


                  Ya, I told them that some of my boy's history can be found in his file. They said they don't share files either! In fact CDU works independently from all depts in KKH. They even insisted on a separate appt card when I simply brought one of my boy's numerous kkh appt cards. They must paste a sticker over the back that gives a different address.

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                  • M Offline
                    mashy
                    last edited by

                    And they are very inefficient. I heard from my sil who is on the waiting list to send my nephew for some assessment, they didn’t call for months! Then when my bil called and asked, they then gave them an appt date.

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                    • M Offline
                      mashy
                      last edited by

                      Here's a blog from a mummy that i just read. I wonder if she is among us here. She's really one hardworking mom. She has recorded her son's progress over the years.


                      http://myspecialrayyan.blogspot.sg/search?updated-min=2012-01-01T00:00:00%2B08:00&updated-max=2013-01-01T00:00:00%2B08:00&max-results=33

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                      • D Offline
                        Double E
                        last edited by

                        Mashy

                        I am following her blog as well.

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