All About Autism
-
helplessmum3:
Helplessmum,Imeemee, Slimkhoo.
My son is doing very well in the smaller group mainstream childcare.
So I just worry the structure method teaching in rainbow may make him fall back into.
Ok I try to monitor the progress
Thanks for all your sharing.
ImeeMee,thanks, recd yr pmed.
Nugget, im not looking at result. jus worrying. ok i will try to relax now,thanks
If you have the bandwidth then can continue to enroll him into the mainstream CC.
I also feel EIPIC pace is much slower cos they break down steps, slowly teach the child. But its good, cos they absorb more.
I think a balance of both will be good. But you need time and support and money to achieve all these.
Hang in there. U are already doing your best. -
nugget:
Nugget, I went from FTWM to now a PTWM with the main objective to support my doter. Even with this arrangement, I still find that I do not have enough time to attend to her, what with her many things to follow up on, and with two elder gals with heavy homework almost everyday.There were a few posts back talking abt allergy test and diets.
I admire mummies who do GFCD diet for their sons. I tried and it so expensive and so hard to keep up. Not to mention the stress against the older folks who say why cannot eat this or tat... I really got to give it to the mums who persist.
I have known of a friend's friend son benefited from allergy test by cutting out certain food from his diet (i do not know a lot of details), and he went acupuncture as well. Now this boy is diagnose as PDDNOS. The mother quit her job to look after him full time and send him EIPIC 4x per week, cook special meals and send him for acupuncture.
Sometimes I feel so guilty not doing all these for my son. I cant quit my job cos I need to plan for all my kids future and to support the family. But if I am at work, I cant do all extra things for my son. End up sometimes I dunno how to strike a balance as well. And I still got 2 other younger kids to attend to.
But whatever it is, I feel I give it my best shot. Just hope my son gets better and better. I am glad we have this support group. Else I will be so so miserable.
Truth be told, with the beginning of the new year, and new logistics arrangements to work on for my elder gals, plus additional mainstream childcare center for my ASD doter in the afternoons, all I do almost everyday is to monitor the time so I know who to fetch from where to where. Like a headless chicken running all over the place. Its just three weeks into the new year and I can already feel the toll.
Then there are so many things to follow up with my #3 and only so little time. If I focus on handwriting I cannot do story retelling. If I do fine motor skills I cannot do social activities. And all these are areas that are being requested by the therapists/schools to focus on.
And now with part-time work also not easy, new projects will be coming along soon. Worse still, dh scheduled for overseas trips this year. Its scary even thinking about it.
No choice, one step at a time, I also wont be able to think too far. There will always be constraints no matter how hard we try. You are right, try our best and stay positive.
-
ImMeeMee,
I might be scheduled for overseas trip. I trying very hard to push. I dunno how my hb will manage without me at home. But no choice, we cannot go on single income, we need dual income to sustain.
We both have 3 kids, really really challenging. -
I saw this article by Stemcord, scientist are studying the use of stemcells to treat ASD. Dunno how successful it will be.
http://www.stemcord.com/emailer.php?eid=15&utm_source=StemCord+EDM-Jan2013&utm_campaign=79e088a2f1-StemCord_Quarterlys_Test_11_17_2012&utm_medium=email#2
Autism and Umbilical Cord Blood Stem Cells
Autism is a childhood disorder that commonly occurs within the first 3 years of life. It affects the development of the child’s normal social and communication skills. The exact causes are unknown. Genetic factors, diet, vaccines and mercury had been implicated. The exact incidence is also unclear but it is believed to be much more common than previously thought. A more detailed discussion on Autism can be found at this link, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1914111/
This link also discusses the social & communication problems that result from the abnormal brain development as well as some of the treatment options. However, treatment options are difficult, expensive, not always easily available and very prolonged. Caring for an Autistic child is very intensive, time-consuming and really requires total love and commitment.
However, as in Cerebral Palsy, there may be hope in the form of umbilical cord blood stem cells. Cerebral Palsy is similar in that the normal neurological developments of the growing child are impaired.
These abnormal neurological developments of Cerebral Palsy have been shown to improve after infusions of umbilical cord blood stem cells. It is these successes that had led to a new study being initiated for treatment of Autism in the United States this year by Dr. Michael Chez of the Sutter Neuroscience Institute. This study (at this link, http://fox13now.com/2012/08/22/stem-cell-research-may-have-application-to-treat-autism/) has been approved by the FDA in August 2012 and will start recruiting patients. It is only a small study, recruiting only 30 patients. But this is an FDA-regulated study which underlines the importance attached to this novel treatment for Autism. This study could well be the important first step that many parents with autistic children are praying for.
The exact reasons why umbilical cord blood stem cells can treat Autism are still not clear. One possible mechanism is that the umbilical cord blood stem cells may help to regulate the immune system in children with Autism (which is believed to be dysfunctional). The other possible mechanism is based on the same concept in Cerebral Palsy, that umbilical cord blood stem cells will help to regenerate new brain cells that will repair the damaged portions of the brain. Whatever the reasons may be, many parents with Autistic children are not so concerned or interested in them. To these parents, a cure or at least some “better” forms of treatment is what they are interested in. We do have many requests or enquiries into the use of umbilical cord blood stem cells for Autism. We will be monitoring the results of this study and will provide regular updates whenever available. -
nugget:
nugget, :hugs:ImMeeMee,
I might be scheduled for overseas trip. I trying very hard to push. I dunno how my hb will manage without me at home. But no choice, we cannot go on single income, we need dual income to sustain.
We both have 3 kids, really really challenging.
When I was working FT, I had to do intensive traveling too. Averaged out, it was about once every 1 to 2 months.
Back then, it was during the period when I was still coming to term with her diagnosis. I recall a lot of times where I hid in the hotel room and cried my heart out in the middle of the night. To manage, I always took the last possible flight in and the first possible flight out. While other colleagues stayed back after official meetings to sight see or shop, I would put myself on the first flight out, sometimes mid night flights as well.
Home front, my dh was able to cope well, but the various therapy sessions took a toil as he is also keeping a FT job. So in the end I decided that PT was the way cos it allowed me to step down from my portfolio and drop the traveling.
Sorry i dont have advice for you here, and hope I am not scaring you on your impending trips. Just wanted to share I know how you feel in terms of the apprehension and the worry.
Conversely, I am the one that is worried that I wont be able to cope when my dh starts traveling, as we would have other issues to worry about ... :sad: -
slmkhoo:
slmkhoo, you really have come a long way, while we mummies of relatively young kids are still struggling with the same issues that you have dealt with long ago.I can imagine how you feel. When my Aspie girl was 4yo and my other girl 2yo, I was also taking a course with my husband. We were overseas with no family or home help, with lectures and homework to do. At that time, we were realising that there were issues with the older girl, but we were taking the one-thing-at-a-time behavioural route and doing things DIY. I feel I spent that year watching the clock too! I think you will get into the rhythm eventually, and at least there will be breaks when the school holidays come round. Try to get the older ones to be as independent as possible.
For the various things the therapists and teachers are asking you to do, make a list and prioritise. Trying to tackle too many at once is too taxing to both you and your child. Do one thing until you are over the 'hump' and your child is coping better before adding something else. Tell the teachers/therapists what your plan of action is, and tell them you will get to each item eventually. I think they will understand if you explain.
yes, its a new work year so still adapting and finding optimal approach. I am quite optimistic that the logistics and to-do-lists will work out as long as we prioritize and moderate expectations. -
i feel tat i use this to cause my son like this
http://www.babyplus.com/ -
ImMeeMee,
Lucky for me, my boss have been very understanding. I have so far escape travelling 2-3 times already cos of my son's first diagnosis, then I became pregnant etc. This time is to travel for training and meetings. Boss told me that I will travel no more than 2x per year.
However, that 2x per year I am also very unwilling. I think I will be like what you say, last flight to fly in, first flight to fly home. Not only I worry abt my ASD boy, I am also worry about the 2 younger ones esp the infant. *hope i can escape this time round too*.
You have given up a lot of your kids. That's the guilt I am talking about. mummies giving up their career for the children, I can't do it. I feel that I am short-changing my children sometimes. Sigh... Without me working, I cannot engage pte therapy and buy good food and materials for him and his siblings. If I am not working, we will probably be doing okay, but budget gonna be super super tight and stressful. Fortunately, I no need to OT. So everyday can knock off on time.
slmkhoo,
You have really share a lot with us and have indeed come a long way. I cannot imagine during your time when your dd was young, with such little information. how you manage to pull through. Really salute you. :udawoman: -
Hello,
I wanted to stop by and let parents know about a speech/communication therapy program that I’ve seen be very effective with my friend’s son. He was suspected of autism,and they have someone come work with him in their home. They work in the Klang Valley. Let me know if anyone is wanting more info, I can pass it to you. -
slmkhoo:
thanks slmkhoo.
If this is to blame, they would have been sued and gone out of business. If it helps you to blame something, go ahead. But the research shows that it's inborn, in the genes. Once the embryo is formed, the genetic material is already fixed. Just accept that every kid is different, some more different than others.helplessmum3:
i feel tat i use this to cause my son like this
http://www.babyplus.com/
Imeemee earlier has told me that already just tat this keep buzzing me. hiaz..
ok understand now. thanks GodMum hee
Hello! It looks like you're interested in this conversation, but you don't have an account yet.
Getting fed up of having to scroll through the same posts each visit? When you register for an account, you'll always come back to exactly where you were before, and choose to be notified of new replies (either via email, or push notification). You'll also be able to save bookmarks and upvote posts to show your appreciation to other community members.
With your input, this post could be even better 💗
Register Login