All About Autism
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Chewy88:
We also went to arc few wks ago for interview,having been to rainbow and arc i must say arc seems to have a better environment.Hi Couragemom, sorry for my boo boo. just realised your kid is not small anymore:-) I'm just hasty and coming on the thread.
Been feeling a mite anxious cos I just went for epic interview at ARC yesterday with my 2.5 year old son and being told the wait is going to be 1 to 1 & 1/2 years long. The metta at ponggol wait is long too. haizz... meanwhile we do not know if our savings can sustain the private therapies. Been coming here to read up on everyone's experience. Feeling a bit helpless but not wanting to stop my private therapies cos we've been seeing so much progress with my son. He's at the age that he should be on early intervention and not stop.
We are worried cos he is not talking to his classmates at childcare and only does labelling. Recently teacher said he does go up to his classmates but ends up talking 100% gibberish to them. He does understands what we are saying in english but not able to form speech. speaks funnily and his speech changes sometimes milk becomes muck then a perfect milk pronunciation another day.
sometimes he surprise us by speaking a perfect complete sentence like 'shall we go' when he wants me to get up from my bed saturday morning. Sadly he doesn't repeat that anymore. only once. Does anybody experience that?
Its just me and hubby taking care of my wee one and its been very lonely and scary finding the correct help and making all appointments for the workshops and all to process the documentation.
The KKH doctor wrote in her report that my son has GDD and did not tell me at all. Hence when we tried to apply to ARC, I was told that he does not qualify. Am pretty disappointed with the whole process of going through consultation and stuff. Staff are kind but going through the works and my son is like another number to go through. I was v frustrated and called KKH and spoke with the doctor who changed her diagnosis to suspected autism. Her reply was that I raised my fears of having my son grow up with ASD stigma but she never advised or informed me that she would put him under GDD. I've read up quite a bit since then and if my precious has ASD it is ASD. I should be getting him the correct help. Before the telephone rep on epic informed me that my son is diagnosed as GDD I didn't even know what is GDD and she had to explain to me.
Though the doctor changed the assessment on her report there was a note of the slightest irritance in her voice and I still have to see the same doctor for follow ups with Jet the next few months. I'm like feeling blue about it.
Welcome any advice or sharing of experiences.
Does any of you mummies wait that long for placement at Epic? Any of you place your child at ARC?
I was also asked to pay 31.50 for an assessment fee at ARC too when we went for the interview. I felt it was rather strange but didnt query since the amount was not very big.
I also hear good review from my therapist and kkh dr.
If ur boy is gdd then its probably easier to manage then asd cos asd is a lifelong condition and need ample time n effort, has no cure to it but we have to just keep on giving them therapy. Dun worry much, just keep practicing! -
Summerp83:
Hi Summerp83,Hi,
I'm new in this forum group. Wanna ask if any of your kids taking Vitamin B12? Recently my 4 yrs old non verbal ASD boy keeps getting tounge ulcers and heard that it might be Vitamin B12 deficiency. The lack of B12 also causes speech delays. Anyone has any knowledge or experience to share?
Maybe you can consult a GP whether to do a blood test to confirm B12 deficiency?
Is your child using a SLS free toothpaste? My child rarely has ulcers since he switched to Biotene SLS free toothpaste, available in Unity. -
Hi,
Long time no see. Overall DS progressed quite well during this year especially social part. Yesterday went for P1 orientation, excited and stressful. There are so different between primary school and childcare. I already applied for parent support group and will try my best to help him adapt to new life. -
Hi Niu2009,
My boy starting P1 next year in mainstream too, so nerve wrecking counting down to it! -_-" -
5.5 years old kkh will assess whether the child ready for mainstream test.
Anyone that have the experience can help to share how the test conduct and what kind of question cover ? -
Hi Tyeogh, Double-E and all mummies and daddies here!
How are you?
I just went back to read up Tyeogh's posting in July and saw that his boy was offered a Foundation level year in Pathlight.
My opinion? I would recommend he takes up Pathlight's offer at Foundation level for 2016 and then he will have another year to consider what he would want to do for 2017. Reason being his boy is a year-end Dec boy hence the choice is either to defer P1 and repeat K2; or to go for Foundation year at Pathlight in 2016. Let's say Mr Tai Kor has already decided to put boy #4 at PL-Foundation, then in 2016, he will have the chance to experience PL and see how well is boy #4 progressing then decide whether to continue on at Pathlight for P1-Standard in 2017, or to Kor Kor's mainstream school P1.
Best regards,
:celebrate: -
Summerp83:
Hi Summer83!Hi,
I'm new in this forum group. Wanna ask if any of your kids taking Vitamin B12? Recently my 4 yrs old non verbal ASD boy keeps getting tounge ulcers and heard that it might be Vitamin B12 deficiency. The lack of B12 also causes speech delays. Anyone has any knowledge or experience to share?
My son used to have intravenous B12 Jab for about 9 months and I switched to B12 tablets after that. For him, we did not see wow effects when he was on B12 jab. My son did not have ulcers so I cannot comment on the effect of B12 on ulcers.
The thing about B12 jabs is that we parents have to inject it on the bum while they are asleep and try to do it on the surface so that it doesn't get flushed out of the body too quickly. It was traumatic for me. :yikes: -
DesertWind:
Hi Desert wind,Hi Tyeogh, Double-E and all mummies and daddies here!
How are you?
I just went back to read up Tyeogh's posting in July and saw that his boy was offered a Foundation level year in Pathlight.
My opinion? I would recommend he takes up Pathlight's offer at Foundation level for 2016 and then he will have another year to consider what he would want to do for 2017. Reason being his boy is a year-end Dec boy hence the choice is either to defer P1 and repeat K2; or to go for Foundation year at Pathlight in 2016. Let's say Mr Tai Kor has already decided to put boy #4 at PL-Foundation, then in 2016, he will have the chance to experience PL and see how well is boy #4 progressing then decide whether to continue on at Pathlight for P1-Standard in 2017, or to Kor Kor's mainstream school P1.
Best regards,
:celebrate:
Yup, Pathlight Foundation year it is. Just bought his Pathlight school uniform and textbooks. He is a Dec 29 boy so yeah...why push it. Thanks for advice and thanks to all who previously advised. How's everyone doing? -
My son is diagnosed by KKH for ASD when he weas 3 1/2. Went through cycles of therapies and not really useful. He was not able to cooperate with the young psychologist when he did the P1 readiness test at the age of 5.5, he was reluctant to do even simple writing. This year, with him in a SPED school, Together With a special blend of essential oil given by my SIL, my boy showed tremendous improvement, he is able to say full sentences, taking initiatives to do simple writing.
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tyeogh:
tyeogh
Hi Desert wind,
Yup, Pathlight Foundation year it is. Just bought his Pathlight school uniform and textbooks. He is a Dec 29 boy so yeah...why push it. Thanks for advice and thanks to all who previously advised. How's everyone doing?
Great to hear that! I remember I was very excited when DD3 started first day at PL cos everything was new to me ... And to see your special child reach this milestone, there are no words ... Hope you will have that great feeling too, albeit being a bit silly ...
Do keep an open mind. PL is not perfect, just like any other school. But relatively speaking for me, it has given me better assurance in providing DD3 with a safe and engaging environment to learn with her peers. DD3 will move on to P3 next year. While the academics will get more challenging, will try our very best and hope for the best.
To a fruitful 2016! :celebrate:
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