All About Autism

[ImMeeMee]

funkymonkey:

Hi all,

After reading the topic on Autism,i don't feel so lonely...
My gal is diagnosed as Oral Dyspraxia and Dyslexic and will be attending Primary one next year. I checked out Pathlight but we were rejected or discouraged i should say as my gal is not Austistic and have no bahavioral problems.
We've been in theraphy ST,OT,SP.ED since she was 2!!!( we started SP ED 2 yrs ago)
My gal has come a LOOOOOOOOONG way and i am soooo very proud of her achivements considering that she could only eat solids and blow her candles only by the age of 4....
My only worries is that teachers will not be as patient or as understanding.
My gal is not eligible for special schools as her non-verbal IQ is above average but her verbal IQ falls below the average range.She is so called \"neither here nor there\" case.
I just hope that she'll be happy in school,once she's not enjoying learning, i will have to homeschool her again.
So for all of you out there with special kids like me,Hang in there for there will always be light at the end of the tunnel...

hi funkymonkey

the one thing that i have learnt through this so far is to adapt. if things dont work, continue looking and trying other things until something positive comes along.

so dont give up, and yes, you are not alone. it has been 3 months since we started therapy sessions and GFCF diet for my dd3. I am so happy that she has learnt to clap her hands and do 'high-5' since then. it is really great achievements.

she is still non-verbal though. i look forward to the day when she calls me 'mummy' or my dh 'papa'.

as parents we are greatly encouraged by the positive outcome. of course there is always this fear in me that she may regress one day, which happens to some kids, but we just have to push on.

hang in there.

[funkymonkey]

Dear Immeemee,

Yeah, my gal was non verbal too at 3....when she turn 4 then she started speaking....even swallowing and blowing took tremendous effort on her part....
dun worry,you time will come when daughter will eventually speak....i still remember how hard we cried when she could blow her birthday candles at four!!!!!
thank you and hang in there too :snuggles:

[SpecialNeeds]

ImMeeMee:

SpecialNeeds:

I was at the http://shoulders.freeforums.org/workshop-on-neuroscience-advances-t180.html this week and was very happy to know that there were school teachers showing up. Mainstream school teachers should attend more of such events.

from the weblink, the workshop sounds quite interesting. too bad it is over. is there any way I can be informed of such activities beforehand, such as subscribing to certain websites etc?

thanks

I have put up some http://shoulders.freeforums.org/post537.html#p537 taken at the workshop.

Check out http://shoulders.freeforums.org/events-f23.html for events and activities.

[ImMeeMee]

SpecialNeeds:

ImMeeMee:

[quote=\"SpecialNeeds\"]
I was at the http://shoulders.freeforums.org/workshop-on-neuroscience-advances-t180.html this week and was very happy to know that there were school teachers showing up. Mainstream school teachers should attend more of such events.

from the weblink, the workshop sounds quite interesting. too bad it is over. is there any way I can be informed of such activities beforehand, such as subscribing to certain websites etc?

thanks

I have put up some http://shoulders.freeforums.org/post537.html#p537 taken at the workshop.

Check out http://shoulders.freeforums.org/events-f23.html for events and activities.[/quote]thanks for information.

[ImMeeMee]

it is one of those bad days. she seems to go back to her spinning of objects and being obsessed with light and sound.


a bout of diarrhoea and fever seem to have brought the efforts that we have put in and the joy that we have gathered this while to a zip.

this has been my greatest fear and it is happening now. somehow i have been expecting that one day it would happen. its just natural progression that she may go through this before the next quantum leap. just that when it happens it is such an emotional rollercoaster ride for me.

I feel great sadness in me, seeing that she is trapped in her world and that I am not able to reach out to her to help her.

such is the sense of loss that I become trapped in kubler’s grief again.

[Blobbi]

Hugs to you, IMM.


I’m sending you a PM.

[Sun_2010]

ImMeeMee,


Try letting go of the helplessness.

U r a wonderful mother and she is a beautiful child. And that is all that matters

:grphug:

[schweppes]

ImMeeMee:

it is one of those bad days. she seems to go back to her spinning of objects and being obsessed with light and sound.


a bout of diarrhoea and fever seem to have brought the efforts that we have put in and the joy that we have gathered this while to a zip.

I'm not a medical practitioner, just wondering, was your dd on antibiotics? Could it have caused her to revert to \"old\" ways?

In the early years, I observed that dd would have mood swings and meltdowns whenever she was on antibiotics. I'm not sure if this is the case with every child, but it was what I noticed in my own kid.

It got better when she was older. So, if she has to take antibiotics, I try to get her to drink as much water after that - to flush it out of the system. I also get her to take probiotics (you can try Culturelle or Threelac) to help the good bacteria to grow in her gut. Found that this helped to balance the intestinal system for my child.

ImMeeMee:

this has been my greatest fear and it is happening now. somehow i have been expecting that one day it would happen. its just natural progression that she may go through this before the next quantum leap. just that when it happens it is such an emotional rollercoaster ride for me.

I feel great sadness in me, seeing that she is trapped in her world and that I am not able to reach out to her to help her.

such is the sense of loss that I become trapped in kubler's grief again.

I can understand that you are very disheartened and discouraged now. It is an emotional roller coaster ride. There will be days when they child will regress BUT after going through this difficult spell, the child WILL leapfrog and progress.

You would think the child has progressed and there is this glimmer of hope, and then suddenly you feel as if you have fallen into the dark hole again. But somehow, before you know it, the child seems to have improved and moved forward again.

It's really an up and down journey. And it's emotionally exhausting and physically tiring. I know it is easier said than done, but do hang in there and don't give up. Our kids need us to stay strong to help them get better.

:hugs:

[ImMeeMee]

Dear Blobbi, Sun_2010 and schweppes, thanks for the encouragement. I do believe that the child will get better after hitting the bottom, just that it is difficult to cope with the emotional distress as a parent at that particular point. It is painful to see your child trapped and feel helpless about it.


schweppes, I have not put her on antibiotics. in fact, we are scratching our heads as to why she was having diarrhoea, as her diet was not out of ordinary for the last few days. Our only speculation is that she may have contaminated something while putting things into her mouth which she sometimes does.

one question. how do you manage your kids’ medicines if you are putting him/her on GFCF diet? Do the medicines contain gluten or casein, and how do you cope? I put her on panadol syrup to control her fever, but realise that the syrup was quite sticky in consistency, so suspect that there could be gluten.

TIA for advice.

[cnimed]

Hi, most syrups are made from wheat or corn. I had to search really hard to find sweets made only from rice malt or sugarcane for my kid. Another consideration is the coloring.


hth.