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    All About Autism

    Scheduled Pinned Locked Moved Special Needs & Learning Difficulties
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    • J Offline
      JJJJ.05807s
      last edited by

      Dear Helpless mum


      Your son is only 2.5 years old. It is not too late to start speaking to him and connecting with him. Don’t feel guilty look forward and just spend time and enjoy your boy. What is your concern that you need early intervention. Don’t diagnose your child to early. Give him sometime.

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      • J Offline
        JJJJ.05807s
        last edited by

        Please don’t be despair. You know as parents we make mistake. God is watching over your child. Don’t worry help is on the way. I make many too. My son turn out well. He is 13 now.

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        • phtthpP Offline
          phtthp
          last edited by

          hi helplessmum,


          perhaps you can call up my friend ? She has handled kids in same situation as yours before. She wants to encourage and guide you how to bring up your child - using the motherly love instinct. i had pm you her telephone.

          we're all here to help you, as best as we can. God in heaven is looking after your child, don't fret. God loves your son very much. :grphug:

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          • DesertWindD Offline
            DesertWind
            last edited by

            helplessmum3:
            DesertWind,


            i feel more that God send me to this portal with so many God's send angels here to share & help me...

            KKH did have a appointment for me for OT already but Speech therapy totally no appointment at all, will advise us later when have, and for early intervention also got to wait for half yr or longer. I tot KKH OT will be no good, so i worry too. good that u tell me this, so i can save some cost for private OT.

            May i noe what is the fee for your private early intervention centre cost per month? how many hrs. is it like child care 7am to 7pm? i am working mum. i dun have parents to help.. so solely depend on childcare hrs. so i can work..

            for me i did not unhappy with KKH doctor, i jus unhappy of myself. i also accepts tat y i been crying & feeling very scare.. although yet to see phycologist to confirmed.

            you know after visit, KKH doctor, i dare not to face my son for few days, whenever i see him i will cry...feeling i have lost my son..

            i will try not to cry anymore. I will try.

            How possible will KKH withdraw the label if after labelled ? you know what i mean?
            Hi helplessmum, :hi5:

            Yes, I think KKH OT is good (ie. the one at the Health Promotion Board) because they have a lot of information (trays and trays of different write-ups and handouts) and senior and experienced OT staff. I mentioned this to my boy's KKH CDC doctor and she agreed and told me that KKH's OT IS very good, that's how they can compete! KKH will give max 6 rounds of OT sessions only and not say suka suka can go after that. So I highly recommend you to go to their OT, get as much information as possible and complete the sessions offered. After that, the therapist will write a report to the KKH CDC doctor so that she can further advise you when you next go to see her.

            For me, we actually completed the KKH OT long ago (6 sessions), after which my boy got a very good report! Then not long after we attended the toilet-training session, my boy got toilet-trained at about 3 yrs 3 months hence we were very happy! Then recently it seems my boy got some sensory issues so I requested KKH doctor to help get me an appointment with the OT again so that I can go find out more. He is now 4.5 yo.

            As for the private early intervention centre, no, they are not childcare centres and the hours are like kindy ie. 3 hrs only and no transport! In your case, i think you don't change the childcare arrangement if your boy is quite ok in his current CCC.

            As for the label, I understand from the doctor and other parents too that you need a provisional label in order to go for the government funded EIPIC programme which is available until 6 yo. Then at 6 yo, can go to the doctor and get the label \"knocked off\". I am not sure exactly how though, I presume the child should have improved sufficiently by then so that the label is no longer needed? Perhaps you can check with your doctor about it!

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            • H Offline
              helplessmum3
              last edited by

              Thank u, thank u very much all.


              What is sensory problem mean?

              He loves to feel all kinds of texture. He enjoys sands, brush,water and all…

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              • L Offline
                lavendery
                last edited by

                Some examples of sensory problems are spinning, walking with tip toes, shaking head, head banging, rocking body, flapping arms, walking around, sensitive to certain textures etc.


                Please correct me if I’m wrong. Thanks

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                • S Offline
                  schweppes
                  last edited by

                  helplessmum3:
                  Thank u, thank u very much all.


                  What is sensory problem mean?

                  He loves to feel all kinds of texture. He enjoys sands, brush,water and all..
                  Actually sensory issues mean that the child has difficulties or problems with one or some of the 5 senses. For example:

                  Tactile (touch) - child is sensitive to walking on sand, grass; wearing new clothes or certain types of fabric which scratches his skin

                  Auditory (hearing) - sensitive to sounds or loud sounds; they may cover their ears. Sometimes if they the surrounding sound is not loud (to us) but it is amplifying to the child, it will hurt the child and he will cover his ears. This means that what is \"normal\" to us can be 10 times louder to them

                  Smell - sensitive to certain smells; their sense of smell could be very acute or deficient, it depends from child to child.

                  Sight - sensitive to light or even camera flash

                  Taste - this affects the oral cavity (mouth area)

                  There are plenty books in the library which one can borrow on sensory disorders and the different interventions or strategies to help the child overcome the difficulites. A good OT will help to alleviate and moderate the child's sensory issues

                  1 Reply Last reply Reply Quote 0
                  • H Offline
                    helplessmum3
                    last edited by

                    Sorry in reading via iPhone. Tonight will login via laptop so I can reply clearly…


                    Really thanks so much for everyone here to share n care.

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                    • S Offline
                      specialboymum
                      last edited by

                      schweppes:
                      helplessmum3:

                      Thank u, thank u very much all.


                      What is sensory problem mean?

                      He loves to feel all kinds of texture. He enjoys sands, brush,water and all..

                      Actually sensory issues mean that the child has difficulties or problems with one or some of the 5 senses. For example:

                      Tactile (touch) - child is sensitive to walking on sand, grass; wearing new clothes or certain types of fabric which scratches his skin

                      Auditory (hearing) - sensitive to sounds or loud sounds; they may cover their ears. Sometimes if they the surrounding sound is not loud (to us) but it is amplifying to the child, it will hurt the child and he will cover his ears. This means that what is \"normal\" to us can be 10 times louder to them

                      Smell - sensitive to certain smells; their sense of smell could be very acute or deficient, it depends from child to child.

                      Sight - sensitive to light or even camera flash

                      Taste - this affects the oral cavity (mouth area)

                      There are plenty books in the library which one can borrow on sensory disorders and the different interventions or strategies to help the child overcome the difficulites. A good OT will help to alleviate and moderate the child's sensory issues

                      the sensory issues usually varies from kids to kids, while some are hypersensitive and some others like my son is 'under' sensitive. The problem arises from being over or under sensitive is lack of the ability to regulate themselves, which may result in behavior like meltdown, not able to focus, lack of eye contact, speech and language, anxiety etc.

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                      • H Offline
                        helplessmum3
                        last edited by

                        What is meltdown means?


                        Why society wan to labelled extraordinary kids. Too high iq or too sharps also wrong 😞

                        1 Reply Last reply Reply Quote 0

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