All About Autism

[Double E]

Mummy June

I can tell that my friends and relatives feel sorry for us. While I appreciate the empathy, I was a total wreck inside. Some try to comfort us with words, some try to pretend everything is normal and that my son is nothing unusual, I know they try to make us feel better by not commenting. But that Sat was bad, just totally bad for me. I felt terrible because my boy’s behaviour and flexibility regressed when he is supposed to be better after all the therapies. But from this forum, I often see comments that the kids will sometimes regress first before making a huge improvement. So I am still harbouring the hope that this is just a phase for him.

And today I went to visit my boy at his EIPIC, he cried badly when the OT tried to cover part of his body with a sack. He had the same issue last week with his private OT. And we conclude that he has the fear because he felt claustrophobic inside a confined area and can’t expect or see what is coming. That could explain why he recently rejects indoor playground/playgym but is fine with outdoor playground.

Jia you Mummy Jane! We just have to keep trying and trying. For speech, when my boy still has no speech at two, I was wondering when can I see the light at the end of the tunnel. Will he be able to speak at all? Then at 26 mths, he finally mumbled his first word, more words came and slowly at 30-31mths, he begin to combine words. And now at 40mths, he can speak 3-4 words in sentence, although still not perfect, I know he has improved since one year ago. For your boy, you may want to seek out private ST if you haven’t. Or go to KKH’s rehab centre (ENT) to request to attend this course "It takes two to talk", my boy starts talking after I tried to apply the methods in this course. Is $1500 if you are a private patient of kkh.

[mashy]

Mummyjune


Pat pat. My 6 yr old also cry when his younger sis touched his stuff. He will say ‘mei mei wants my balloon.’ sigh. He’s a cry baby now. Every little bit, his eyes will well up and he will start to cry. So now I refuse to help him or interfere. If he is upset with his sister, he should deal with it and talk to her rather than cry.

[helplessmum3]

When my son meltdown at my friends house warming party . My friend ask me is it my son see "dirty" things at her new house !!!???

[Mummy Rosy]

mummyJune:

Mummy Rosy:

[quote=\"mummyJune\"]dear mums, my earlier posts had mentioned that my 3yr old son still not speaking & communicates through screaming & crying.


well, at a recent family gathering, i had brought my son along, & my cousin's boys were playing with my son & my son, started screaming when 1 of the boy touched a toy that my son was playing. so the boy commented to his younger bro \"u better don't go near him, later he scream again, i cannot stand his noisyness, so irritating\". i was there & heard him said it. den , some relatives who noticed that my son was screaming, asking me \"whats wrong with him? keep screaming like got problem, u got bring him see doc anot?\" den another relative said\"i tink yr son got problem, u better bring him see doc\"

all sounded like my son got problem. i just said, he doesn't have any problem, he's just not able to speak properly YET. in fact, we left halfway cos the kids were tired.

worst, an uncle told me this\"wa, look after kids tired anot? who ask u get married & ve kids la\" i replied him tired sure will tired, but im happy cos ive 2 healthy kids & i never regretted getting married & having kids. so what he's an elder, so rude to comment like this when 1 of his children is already married.

To me, i feel that the people who has problems are my relatives, not my son.

Agree..sometimes their words can be quite disheartening ..we cant stop people from commenting and giving us sugesstion to bring see doc etc etc..diff kids develop at a diff pace...me too have a son who is a late talker....so dont worry wen time to come ur kid will talk non stop ...cheer up!!!

mummy rosy
how old was yr son when he start talking?[/quote]
He start talking at the age of 5 !!! ...now getting better...

[helplessmum3]

Any idea why ASD kids are having problem on sit learning ah? While NT kids can naturally sit ( paying or not paying attention n they still able to sit still)

[Double E]

helplessmum3:

Any idea why ASD kids are having problem on sit learning ah? While NT kids can naturally sit ( paying or not paying attention n they still able to sit still)

Some are due to sensory issues and some ASD kids have ADHD too, hence can't sit still. And I think most of them have short attention span, so if they can't focus, they will move around.

[Lavina]

happystar:

Hi Lavina, which music therapy did your son attend? Is it Samonas? Your OT was from which centre? I heard that not everyone can start music therapy so fast as the body must be \"strong enough\" to go through it. I guess it depends on the OT's judgement.

Hi,
The OT I went to was at a landed house ran by 2 caucasian women. This was 10 years ago. The woman was actually quite good in other aspects. Just that music therapy didn't work for my child.

[Lavina]

Double E,


Sorry to hear about your weekend. Hugs.

The Law of Progress: any progress consists of ups and downs. But keep up your effort and you'll get to where you're going.

Don't think too much and scare ourselves. We need to stay focused when we are with our child, so that we can pick out the \"trigger\" and work on it.

Sometimes, he may develop a fear for something which he was previously not afraid of. I remember one not so fine day, DS just got really upset with the fountain in Ngee Ann City. Since then he was afraid of all fountains, even small ones which he used to be OK with. For years, he would avoid all known fountains and if he suddenly chanced upon a fountain, he would scream :yikes: and run back. Ear plugs didn't help.

Sometimes, the fear will go away by itself. His fear for fountains subsided when he was 13, when we moved to our current place where there are lots of small fountains. Last year he even walked pass the \"mother of fountains\" at Ngee Ann City. :imcool:

Sometimes, OT helps. For eg, even when DS was in k1, he refused to cross any form of bridges on a playground. He would climb up, look at the bridge and back away. He even needed to be carried across an overhead bridge. Then we found this OT. She had this room which had a net covering the entire ceiling and a rope ladder to climb up. After a couple of sessions, my DS was climbing up the rope ladder and playing with her in the net hanging in mid-air. :rahrah:

Everything will work out in the end.

~ Lavina

[schweppes]

Lavina:

happystar:

Hi Lavina, which music therapy did your son attend? Is it Samonas? Your OT was from which centre? I heard that not everyone can start music therapy so fast as the body must be \"strong enough\" to go through it. I guess it depends on the OT's judgement.

Hi,
The OT I went to was at a landed house ran by 2 caucasian women. This was 10 years ago. The woman was actually quite good in other aspects. Just that music therapy didn't work for my child.

Is this the one near iras? If it is, then i'm not surprised. My kid went to this OT at novena years ago. Not impressed by her and totally inept.

[Lavina]

hi schweppes,


Maybe it is? I remember it is around that area. So qiao. But I thought the place was well equipped and she did helped DS is some areas. Anyway, we stopped going when he entered P1, when there was a whole new set of challenges. It's like every few years, we \"level up\" and get new challenges. Keeps us occupied at all times