All About Autism
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Blokus:
Mashy, are you a Christian? Since you (it was you right?) who quoted the bible? Can I ask if you feel angry at God for your son's condition?
Yes I'm a Christian. I wouldn't say I'm angry with God about his condition. I remember feeling very overwhelmed after his operation. It was supposed to be a simple hydrocele surgery and it turned out more than that. I just couldn't contain it anymore then and broke down. I felt so sad that my boy had to go through so much ordeal. When he was young, he was very sickly. Then his growth issues plus autism and then the botched surgery which we found out another chronic condition which we couldn't do anything about. And this condition may possibly affect him in future.
I did question why did he allow this to happen to a little boy. Felt devastated that my son had to go through so much in just 6 years of his life. Other pp would not have gone through as much in their entire lifetime. I can only say he's a special boy and we have been chosen as his parents. We will just take a step at a time and see where we will go. Actually even talking about it now makes me tear. I think if each condition is in isolation, I won't feel so bad. Like if he just had autism or he only had growth issues or whatever. When all combined, it is like an overwhelmingly huge rock weighing on me. I hope God will remove some of it and provide healing. My boy's autism symptoms seems milder now. So maybe He is healing him from it now. I hope someday, he will indeed be healed of all these illnesses. -
Blokus:
Double E, exactly how I feel. For me, I thought I gave my complete trust in God to take care of my fetus while pregnant; prayed etc. But still, turned out like that. Feel like my trust is betrayed, to the point of questioning my own religion.
I realised that taking care of us and our kids are not a given thing. I've Christian friends losing their babies when near term, some died while in their prime and some lost their hbs. Things just happen. I always imagine if I'm looking at earth at myself and what will I see. I'm just a tiny little dot and just a breath. It is insignificant. The world will move on. We do not understand why certain things happen that way. Maybe there's a reason, or maybe not.
I was once involved in a car accident after I sent my son to playgroup. It was a bad accident and at that instant, I thought I'm going to die. Within that few secs, I thought of how I'm not going to be able to see him grow up and to say my goodbyes. Miracle has it that while the car was badly damaged, I escaped pretty much unscathed. Miracles and protection do happen. But not at your choosing. It's not up to you to tell God what He should protect and what He should let go.
I've escaped many sure deaths in my lifetime. Yes, it's also more than anyone should experience. Yet each time, I also dunno why and how, I managed to pull through. Perhaps it's God telling me that I still have other things I needed to do first. I think I'm more bitter about human beings than of God. God has His plans so we can't be sure what they are. But human beings should adhere to some basic nature like mothers should love their children and people shouldn't try to tear down each other etc. But I've seen that it doesn't always happen the way it should be. Seriously I wish the earth will burn up quickly and swallow all these pp up. -
Mashy, u are a very brave mum. For us, Autism almost tear us apart, but u hv to deal with your boy’s other health issues as well.
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Mashy
You are really a strong woman & mummy! I don't even have half of your strength! Haiz! :roll: -
I’m not brave. My son is the brave one coz he’s the one who has to endure all these ailments. I just look at him and I tell myself that if he can be so strong and so brave about it, I should be too. He took everything in his stride. He is the one who gives me strength. Now even when I had to take blood, I just need to think about how he endured it daily.
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I think all mothers of special needs children are very strong.
Do you all tell people that your son has autism? Sometimes I see how the other mothers are ranting about school, esp now my son is in K1, everyone asking me if I send my son for classes like phonics, art classes, swimming… I dunno how to tell them that my son is asd and needs to attends therapy.
I hv to constantly remind myself that my son is different but not less. I shouldn’t feel inferior telling people he has autism. He is just a normal boy whose behavior and thinking are different from others only. It not like as if he has some life threatening disease. -
It depends. For people whom I am closer with, I will tell them that my son has ASD. For those not so close, I will just say that he is slower in development so has to attend therapy.
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[quote="nugget"]I think all mothers of special needs children are very strong.
Do you all tell people that your son has autism? Sometimes I see how the other mothers are ranting about school, esp now my son is in K1, everyone asking me if I send my son for classes like phonics, art classes, swimming… I dunno how to tell them that my son is asd and needs to attends therapy.
I hv to constantly remind myself that my son is different but not less. I shouldn’t feel inferior telling people he has autism. He is just a normal boy whose behavior and thinking are different from others only. It not like as if he has some life threatening disease.[/]
Hmm… I think I’m pretty open about it. But won’t tell those whom I still deemed as strangers or mere acquaintances. I think for others still ok but I will not tell my boy’s classmates parents unless I already know them very well. Coz I dunno how is their reaction and what they will tell their kids. I just say my son is very blur and needs a lot of help. -
http://www.youtube.com/watch?v=lIZCW2u_JxM&feature=related
this one.
i duno what is visual stimming. -
Yeah sometimes when I tell people about my son’s condition, they will go "when they grow up they will be okay", "Last time my dd also like this, walk around in class and once grow up is okay"… then another keep telling me no need to do anything, wait for him to grow up to be okay.
How I wish i can dun need to do anything about it and wait for him to grow up to be okay… these relatives. And its my MIL and mother who told them my son’s condition. And when I see them they will give me all the suggestions or consolation.
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