All About Autism

[helplessmum3]

I already come across two daddies stay home to help ASD … There infact more is ASD is a son.


FLOOR TIME is very important … Compare to go therapies barely few hrs…

Especially , I no money kind … My son no SLT & OT . Until recently just join rainbow in late jan… :-(…

All mummies Input n generousily share thier experience help me so much that after work I work can w my son…

[wamin]

@jme, thanks. same here my boy turned 4 not long ago.

And he follow instructions and he knows when i am angry :). He can take off his clothes when bathing (thanks to my wife she is very strict and always tell me i am the one who spoil them, but even before i meet my wife i always thought i will give my kids everything what i can afford and will pass on to them what i am learning so i am kind of soft ), take of his shoes and put in rack, operate anything is easy for him (including my phone :(). Since he started EPIC we have seen lot of improvement, in morning when i bring them to school he hold his sister hand and i hold his hand and we walk to car and then same to school (it is fun to see them holding hand, again thanks to my wife she is the one behind this). But my daughter is 3 years and she is not as responsive as much as him, but she have words and sometimes she use them (totally on her mood if she want to use them) but my son is very quiet never said a single word only babbling.

[helplessmum3]

Slmkhoo ,


I have two colleagues gave birth after 40s… Also NT kids …

Just like down D.S probe but still dun get DS kids.

Just high chance

[Lavina]

Just for info:


There is a Special Needs Savings Scheme, under CPF which makes monthly payouts to special-needs children after their parents’ death.

For other money, parents can set up a trust fund with the Special Needs Trust Company (SNTC), which is jointly supported by the Ministry of Social and Family Development and National Council of Social Service.

But I think these are for kids attending special schools only.

[nugget]

helplessmum3:

Wamin. Ya lo very hard to get married and young age..


I mean the facts some how make some sense.

Last time when pp can get married early so lesser ASD .

Now pp very difficult to get married earlier then all asd increasing ..

Think my parents time get married b4 25yo..that's last time standard of living la..

Helplessmum,

I had my #1 when I was 28. My 2nd when I was 31. My 2nd turn out fine. So its not so true.

[Lavina]

I gave birth at 26, relatively young right? also like that…

[wamin]

@nugget, @Lavina just a question. Did doctor prescribe iron pill when both of you were pregnant?

[nugget]

jme:

Wamin,


My child just turned 4. He is a moderate asd. He was non verbal, couldn't follow simple instructions, very mild tempered, never fought with his sister, played on his own.

I noticed something was not right when he turned one. But it took me one year to convince my husband n my child was diagnosed of asd when was two ish. I took advices from others n brought him for therapies n classes but improvement was very little. I started changing his diet n it helped but not enough to make significant changes. I then started doing biomedical august last year.

Now, he is able to follow simple instructions, imitate words n putting effort to speak when he wants to eat or drink. He sings. He will play with his sister (when he is in the mood). He throws tantrums n fight with his sister over toys. I am very happy with his development. Although he is still very far behind his peers in term of \"everything\", I see hope. I will do my best to help him overcoming his learning disability. I sincerely wish that your son will improve. Jia you!

Jme,

Can you share what did you notice when your child is 1?

Like you, I also want to write a will. But I haven't bring up this to my brother whom I will be asking to look after.

I admired you for going the biomedical route, I tried and give up, its not easy and very expensive to do. And my boy loves cakes and pastries sooo much. But we did try to limit all the process food and don't let them take frequently.

[nugget]

wamin:

@nugget, @Lavina just a question. Did doctor prescribe iron pill when both of you were pregnant?

I took folic acid, multivit and DHA pills only. As I posted previously, I think my kid change dramatically after MMR vaccine. He called papa mama at about 1 year old, did everything according to his milestones in the book. Only thing that he is slow is walking which he only starts walking at 15 months.

Other than this, he can smile at us, have eye contact, can say bye bye, can do sign language..

After he took MMR at 18 months and going to school constantly crying (for almost a year), keep to himself, dun play with peers.. We all thought its all normal cos he is a year end baby. Then come when he was about 3.5 years old, teacher in his cc say something is not right with him. He doesnt talk at all in school...

Seriously I didnt know he didnt say a word in schol. Sigh..
My greatest regret is not getting him diagnose early.

[ImMeeMee]

jme:

Hi, I think you have posted similar question before n I believe it has been a constant worry on your mind. My greatest fear is what will happen to my 2 young children should mishap fall upon my husband n myself. I cannot bear the thought of leaving my babies behind. What will happen to them? Who is going to look after them? Will they be loved n well taken care of? I try not to think about it as my heart wrenches when I imagine them having a life without parents.


I got my husband to write a will with me. There will be guardian n co guardian. We even stated a second guardianship should first guardian n co guardian were no longer around. This is the most important n difficult decision. We had to decide who is the \"right\" person. Someone who can love my children as their own, who is willing to sacrifice their time n effort
to raise them, guide them. And this is even harder when it involves with a special need child.

I am also concern whether I will be able to leave substantial amount for the
guardians to look after my children without worrying for the cost n have my children living comfortably n that my son to continue with expensive therapies n diet. I am already grateful that they r willing to look after them n it is unfair to burden them on the finances.

Perhaps my child is different from most of the kids here. He is not hf. I am doing my best to help him and my goal is to improve his condition n that one day he is able to enter path light or mainstream. As for his future, it is just way too far to plan. I just want him to be happy.

jme, yes its a constant worry on my mind, even though at times I struggle with the question of whether I am thinking too much and should just take one step at a time and see where Life leads us.

I definitely have not planned as extensively as you ... :yikes:

BTW, this platform is for all ASD, whether HF or not. In fact, I salute parents who are dealing with more severe issues cos it takes a lot more to handle, and your knowledge on biomed is really something that is highly commendable.

kudos.