All About Autism

[helplessmum3]

Do u mummies feel very hard or knife cut into the heart whenever u see your ASD child’s peers talk n communicate ?

[Double E]

helplessmum

What’s wrong with you again? of course, we will feel upset that our child can’t communicate as well as NT kids but this is not something we can change. We can only continue to help them right? At least most of the kids here on this thread are HF ASD and are verbal, imagine the lower functioning ones who are non-verbal, the pain that their parents experience is many times more than us.

And while I feel sorry for my boy for his lack of comms skills, I am proud of his super memory and his ability to spell, read and do worksheets that are meant for higher levels. Not all NT kids can do that, so I am thankful for his special gifts. Sometimes I think, all thanks to his ASD condition that he can have such good reading and spelling skills which made it easier for me to teach him academics. And believe it or not, I vomit more blood trying to teach my NT girl academics but she is good in comms and fine motor skills which my boy lacks. So I always thank God for giving me the best of both worlds.

Helplessmum, remember, no one is perfect. Even NT kids have their own set of problems.

[braverymom]

Double E:

braverymom

I think is not always true that most discrimination happens at church kindy. Like Melody said, alot depends on the teachers in the kindy or CC. At least, i have not experienced discrimination. I praise the Lord for his blessings and favour on my son. I had met helpful teachers, and no-so-helpful ones. Even the not-so-helpful ones were not that bad afterall, just a bit cold in responding to my questions, other than that, no major issue.

Double E,

True.. In fact, melody's teacher/ school is trying to offer another form of help instead of just tell her off ya. I should have be more positive. Sorry if I cause any mommy distress. Coming to this forum should be helping each other to cope better. I am a Christian too. In fact I feel ok towards my son's condition all the time. Is the world around us that make us stress up. If we don't use the standard that set by other people to judge, our children are actually adorable and still my treasure and my germs. We as mummy just have to learn to adjust our thought ya! Thanks for your 'reminder'. God Bless!

[sharonkhoo]

helplessmum3:

Do u mummies feel very hard or knife cut into the heart whenever u see your ASD child's peers talk n communicate ?

Every parent feels that way with their child, NT or ASD, when they see that other kids are doing much better in any area. If your child it weak at English/Chinese/Maths/Science/music/art/physical skills, or is very short-sighted... won't you feel the same?

[ImMeeMee]

Double E:

ImMeeMee

You have enrolled your doter in Pathlight right? how was it? was the registration successful?

Double E, I have submitted our application, so now waiting for things to happen. Hopefully we are given a chance for school screening by second half of the year, and hopefully she stands a chance to get into the school next year.

The feeling of waiting helplessly for things to happen is really bad. But other than that, I have done all that I can, and now things are out of my hands.

BTW, just a tip to keep enough time for yourself when going through these applications. There is much co-ordination between parents, the EIPIC school and the hospital in getting all the reports - psychology report, school report, medical report, parents' application etc - and its best not to leave everything to the last minute. After our first submission the application was bounced back cos we did not submit our diagnosis report and that ding-dong for a few more days.

[ImMeeMee]

helplessmum3:

Do u mummies feel very hard or knife cut into the heart whenever u see your ASD child's peers talk n communicate ?

helplessmum, I am just being candid. Hope you dont mind.

I think in a way I can understand your pain as your son is the only child, and the pain becomes more poignant and magnified for you. Maybe for parents who have other NT children, the impact is somewhat softened. At least for myself, I see in my elder gals the things that my ASD doter doesnt have, and that gives me some comfort.

But like what Double E says, things are always relative. One thing that I have always been thankful about is that my doter's intervention methods are not invasive. Imagine if she needs to be poked with needles all over for her condition, that would really break my heart.

:hugs:

[jme]

Helplessmum

All mummies experience certain degree of pain n I believe u r too. It seems the way u r dealing with your emotion is to express it frequently n negatively. There is no right or wrong in dealing with pain. I am in pain too. Usually when I look at other children, it is a feeling of joy. They r so young, adorable n innocent. Of course there r moment of weakness n I feel sad when I think of my son n started comparing. But I would brush it aside n do not dwell on my pain. My method of dealing it might not be right. However I do not want to be crippled by this terrible emotion. U have to be careful n do not let your negativity affects your husband n especially your son.

As what double E has said. U r indeed so much luckier as your son is hf n verbal compare to parents like myself. treasure what u have like how I treasure mine.

[braverymom]

Yup! I am currently dealing with 2 ASD and 1 NT boys. All active. It is very frustrating at times, but with the help from people around me, especially husband, that make life easier. In fact my NT boy is more difficult to deal with.

[ImMeeMee]

braverymom:

Yup! I am currently dealing with 2 ASD and 1 NT boys. All active. It is very frustrating at times, but with the help from people around me, especially husband, that make life easier. In fact my NT boy is more difficult to deal with.

braverymom, you have 2 ASD children?

[nugget]

ImMeeMee:

Double E:

ImMeeMee

You have enrolled your doter in Pathlight right? how was it? was the registration successful?

Double E, I have submitted our application, so now waiting for things to happen. Hopefully we are given a chance for school screening by second half of the year, and hopefully she stands a chance to get into the school next year.

The feeling of waiting helplessly for things to happen is really bad. But other than that, I have done all that I can, and now things are out of my hands.

BTW, just a tip to keep enough time for yourself when going through these applications. There is much co-ordination between parents, the EIPIC school and the hospital in getting all the reports - psychology report, school report, medical report, parents' application etc - and its best not to leave everything to the last minute. After our first submission the application was bounced back cos we did not submit our diagnosis report and that ding-dong for a few more days.

Thanks ImMeeMee for the tip.

I am still waiting for my IQ test which should happen next month. Although I made up my mind to let him go mainstream, but in case I really change my mind, I don't know if I have time or chance to enrol into pathlight or not. I am getting stress and jitters again. I better call KKH CDC for the date on the IQ test.