Im not sure exactly how to email on this thing.. here is my personal email... [email protected]


Thank you! Hope to be friends on FB what do i search on FB to be friends with other parents that have a kid with COMA?

Hi there… dident know that there was something on FB regarding it… can you request me on FB so I can see other people kids that have it… Im vanessa maisenbacher would love to hear and share what we all experience. did your dr say he would eventually outgrow this?

Also I wanted to tell you that the Dr told me he would be behind Motorly. Doesent effect there intelligency at all… and at about age 8 on a avg he will be caught up Motorly. ITs just something he has… they are not different from others with just a Motor Delay… good news is our boys will get over this!! please let me know what you experience with your boy.

Hello there my name is Vanessa and I have a 17 month old son with Congenital Oculor Motor Apraxia as well. ITs a very rare condition as you know. He saw one of the best Drs in Los Angeles CA hes a Neuro optpmologist and he did confirm he has it 100% he cant look side to side without jerking the head. He seems to be doing better and is talking alot he doesent walk he doesent have good balance at all. How old is your child? Im glad that I know someone now or can talk to someone regarding this since it is so rare…