All About Autism

[ImMeeMee]

jme:

Hi, I think you have posted similar question before n I believe it has been a constant worry on your mind. My greatest fear is what will happen to my 2 young children should mishap fall upon my husband n myself. I cannot bear the thought of leaving my babies behind. What will happen to them? Who is going to look after them? Will they be loved n well taken care of? I try not to think about it as my heart wrenches when I imagine them having a life without parents.


I got my husband to write a will with me. There will be guardian n co guardian. We even stated a second guardianship should first guardian n co guardian were no longer around. This is the most important n difficult decision. We had to decide who is the \"right\" person. Someone who can love my children as their own, who is willing to sacrifice their time n effort
to raise them, guide them. And this is even harder when it involves with a special need child.

I am also concern whether I will be able to leave substantial amount for the
guardians to look after my children without worrying for the cost n have my children living comfortably n that my son to continue with expensive therapies n diet. I am already grateful that they r willing to look after them n it is unfair to burden them on the finances.

Perhaps my child is different from most of the kids here. He is not hf. I am doing my best to help him and my goal is to improve his condition n that one day he is able to enter path light or mainstream. As for his future, it is just way too far to plan. I just want him to be happy.

jme, yes its a constant worry on my mind, even though at times I struggle with the question of whether I am thinking too much and should just take one step at a time and see where Life leads us.

I definitely have not planned as extensively as you ... :yikes:

BTW, this platform is for all ASD, whether HF or not. In fact, I salute parents who are dealing with more severe issues cos it takes a lot more to handle, and your knowledge on biomed is really something that is highly commendable.

kudos.

[ImMeeMee]

nugget:

Helplessmum,

I had my #1 when I was 28. My 2nd when I was 31. My 2nd turn out fine. So its not so true.

nugget, you are one young mummy to have 3 kids at such a young age! I had my #1 at your age when you had your #3 ...

[helplessmum3]

wills for SPED are more costly, i heard 5000.

[helplessmum3]

wamin:

@jme, thanks. same here my boy turned 4 not long ago.

And he follow instructions and he knows when i am angry :). He can take off his clothes when bathing (thanks to my wife she is very strict and always tell me i am the one who spoil them, but even before i meet my wife i always thought i will give my kids everything what i can afford and will pass on to them what i am learning so i am kind of soft ), take of his shoes and put in rack, operate anything is easy for him (including my phone :(). Since he started EPIC we have seen lot of improvement, in morning when i bring them to school he hold his sister hand and i hold his hand and we walk to car and then same to school (it is fun to see them holding hand, again thanks to my wife she is the one behind this). But my daughter is 3 years and she is not as responsive as much as him, but she have words and sometimes she use them (totally on her mood if she want to use them) but my son is very quiet never said a single word only babbling.

wamin, which of yr child is ASD.. basically most ASD issues are communication. gross & fine motor are usually fine. and taking instruction. just the interaction & communication which hardest for them to over come..

fine & gross motor & behavior is a little easy to overcome compare to communication are more challenge to them..

[nugget]

ImMeeMee:

nugget:

Helplessmum,

I had my #1 when I was 28. My 2nd when I was 31. My 2nd turn out fine. So its not so true.

nugget, you are one young mummy to have 3 kids at such a young age! I had my #1 at your age when you had your #3 ...

ImMeeMee! :oops: :oops:

Ya I wanted to get married and have kids as early as 25. But havent meet my hubby yet. Hahaha.

[nugget]

helplessmum3:

wills for SPED are more costly, i heard 5000.

Huh?? I thought to draft a Will cost only $200-$300? Why $5000???

[Lavina]

wamin:

@nugget, @Lavina just a question. Did doctor prescribe iron pill when both of you were pregnant?

I took folic acid and calcium tablets only after I was pregnant. I read it is better for women to start folic acid before conceiving.

Anyway, I secretly think it is because I ate too much moon cake from bangawan solo...

[helplessmum3]

ImMeeMee:

nugget:

Helplessmum,

I had my #1 when I was 28. My 2nd when I was 31. My 2nd turn out fine. So its not so true.

nugget, you are one young mummy to have 3 kids at such a young age! I had my #1 at your age when you had your #3 ...

my mum give birth to me when she is 22yo. I'm her third child.

jus more 'potential to have ASD & DS' not 'will get for sure'

just trying to link why ASD are increasing...

nevermind la , jus for thinking only not really important to me now..

the channel 5 show \"ask the doctor\" , the doctor die die say this lor.. but most audience oppose.lolxx

[helplessmum3]

nugget:

helplessmum3:

wills for SPED are more costly, i heard 5000.

Huh?? I thought to draft a Will cost only $200-$300? Why $5000???

NT is 200-300, but sped kids other factors, duno what 'trust' de....

hiaz....

[wamin]

helplessmum3:

wamin, which of yr child is ASD.. basically most ASD issues are communication. gross & fine motor are usually fine. and taking instruction. just the interaction & communication which hardest for them to over come..

fine & gross motor & behavior is a little easy to overcome compare to communication are more challenge to them..

helplessmum, both of my kids are ASD :yikes: .
My daughter have words but she don't like to use them (only when she is in mood) and i think at this moment she cannot associate them with real life. On my birthday when everyone was signing happy birthday she said \"Happy day\" i was like . But she like to say papa and mama.

For my son when he was around 1+ he used papa but since then no words at all, all babbling. But recently he start pointing to thing he want me to say and when he playing some game he will look at my face and will wait till i say the name of the thing he is pointing at.

Behavior wise they are quite ok, at time my daughter can be upset when i don't accompany her (normally i work from home and have to be up till mid night or even late and she just pop in my room and want me to accompany her :(, and she don't want my wife :slapshead: ). and if i leave her alone she will cry and don't stop for hours :(.